Table 4. Phase II: Research Prioritisation Workshop (RPW).
| RPW task: Participants asked to assign “high-priority”
stickers to indicate the importance of the following areas for research |
|||
|---|---|---|---|
| Top priorities from Research
Prioritisation Workshop (RPW) |
(n)
stickers |
% | |
| 1 | Data sharing and integration | 24 | 7% |
| 2 | Co-designing services | 24 | 7% |
| 3 | Support at the time of diagnosis | 19 | 6% |
| 4 | Psychosocial impact | 19 | 6% |
| 5 | Transition services | 16 | 5% |
| 6 | Economic impact | 16 | 5% |
| 7 | Role of infrastructure in diagnosis | 15 | 4% |
| 8 | Community-based services, treatment,
multi-morbidity |
15 | 4% |
| 9 | Evidence-based models of integrated
care |
15 | 4% |
| 10 | Psychosocial impact of a diagnosis | 14 | 4% |
| 11 | Best way to deliver a diagnosis | 13 | 4% |
| 12 | Family experience | 13 | 4% |
| 13 | Palliative Care at-home | 13 | 4% |
| 14 | Diagnostic tests | 12 | 4% |
| 15 | Patient Voice | 12 | 4% |
| 16 | Education and training | 11 | 3% |
| 17 | Timeframes to diagnosis | 11 | 3% |
| 18 | Psychosocial services | 11 | 3% |
| 19 | Understanding incidence and
prevalence |
9 | 3% |
| 20 | Role of diagnosis in understanding the
impact of disease |
9 | 3% |
| 21 | Education and training | 9 | 3% |
| 22 | Equitable and timely access, provision
of palliative care |
8 | 2% |
| 23 | Screening and risk | 7 | 2% |
| 24 | Palliative Care education and training
of HCPs |
7 | 2% |
| 25 | Preparation for bereavement,
acceptability of the palliative care role in end-of-life |
7 | 2% |
| 26 | Information and awareness | 6 | 2% |
| 27 | Information for families and patients | 5 | 1% |
| 28 | Advanced care planning | 1 | 0% |
| 341 | 100% | ||