Table 2.
Demographic and clinical characteristics of concept elicitation patient interviewees
| Characteristic | Patients (N = 27) |
|---|---|
| Sex, male, n (%) | 11 (40.7) |
| Age, yrs, mean (SD) [range] | 44.6 (15.01) [22–74] |
| Age first diagnosed with HCM, yrs, mean (SD); median [range] | 32.2 (17.11); 27 [0–72] |
| Country, n (%) | |
| UK | 8 (38.1) |
| France | 6 (22.2) |
| Italy | 7 (25.9) |
| US | 6 (22.2) |
| Employment status, n (%) (patient-reported) | |
| Employed, full-time | 12 (44.4) |
| Employed, part-time | 5 (18.5) |
| Homemaker | 1 (3.7) |
| Student | 1 (3.7) |
| Retired | 5 (18.5) |
| Disabled | 1 (3.7) |
| Othera | 2 (7.4) |
| Is HCM the subject’s primary cardiovascular diagnosis? (clinician-reported) | |
| Yes, n (%) | 22 (81.5) |
| How long has the subject been diagnosed with HCM? (clinician-reported) | |
| Yrs, mean (SD) | 9.3 (8.24) |
| HCM obstruction status, n (%) (clinician- or patient-reported)b | |
| Obstructiveb | 11 (40.7) |
| Nonobstructive | 13 (48.1) |
| Missing | 3 (11.1) |
| Health conditions, n (%)c (patient-reported) | |
| None | 7 (25.9) |
| Anemia | 5 (18.5) |
| Angina | 5 (18.5) |
| Anxiety | 11 (40.7) |
| Arthritis | 2 (7.4) |
| Cancer | 2 (7.4) |
| COPD/emphysema | 1 (3.7) |
| Depression | 7 (25.9) |
| Diabetes | 1 (3.7) |
| Hypertension | 8 (29.6) |
| Myocardial infarction | 2 (7.4) |
| Atrial fibrillation | 5 (18.5) |
| Severity of HCM symptoms as rated “today”, n (%) (patient-reported) | |
| Very mild | 4 (15.4) |
| Mild | 8 (30.8) |
| Moderate | 12 (46.2) |
| Severe | 1 (3.8) |
| Very severe | 1 (3.8) |
| Overall health, n (%) (patient-reported) | |
| Excellent | 2 (7.4) |
| Very good | 2 (7.4) |
| Good | 17 (63.0) |
| Fair | 5 (18.5) |
| Poor | 1 (3.7) |
COPD Chronic obstructive pulmonary disease, HCM Hypertrophic cardiomyopathy, SD Standard deviation, UK United Kingdom, US United States, yrs Years
aOther included self-employed/PhD student, and craftsman
bObstructive HCM was clinician-confirmed for seven patients and self-reported by four additional patients; all 11 were considered to have obstructive HCM for the qualitative analyses
cNot mutually exclusive