Table 1.

Characteristics of Focus Group Participants

Characteristic	Adults with SCD N=46 (%)	Parentsa N=40 (%)	Physiciansb N=23 (%)
Sex
Female	34 (74)	31 (78)	14 (61)
Male	12 (26)	8 (20)	9 (39)
Age Group, years
18–30	18 (39)	1 (3)	2 (9)
31–40	9 (20)	13 (33)	4 (17)
40–50	11 (24)	14 (35)	2 (9)
50–65	4 (9)	11 (28)	10 (43)
>65	2 (4)	1 (3)	3 (13)
Ethnicity
African American	39 (85)	35 (88)	6 (26)
White	0	0	7 (30)
Asian	0	0	6 (26)
Hispanic/Latino	1 (2)	1 (3)	0
Mixed/Other	4 (9)	4 (10)	1 (4)
Educational Level
High school or less	3 (7)	3 (8)	0
Some college	17 (40)	20 (50)	0
Bachelor’s degree	9 (20)	4 (10)	0
Master’s degree	13 (28)	9 (23)	0
Doctoral degree	2 (4)	4 (10)	23 (100)
Health Insurance
Private	15 (33)	21 (53)	n/a
Medicare	19 (41)	5 (13)	n/a
Medicaid	14 (30)	14 (35)	n/a
Military healthcare	0	1 (3)	n/a
No coverage	2 (4)	4 (10)	n/a
Other	3 (7)	0	n/a
Marital Status
Married	11 (24)	22 (55)	n/a
Widowed	1 (2)	2 (5)	n/a
Divorced/separated	4 (9)	7 (18)	n/a
Never married	20 (43)	7 (18)	n/a
Living with partner	7 (15)	1 (3)	n/a
Attended US Medical School?
Yes	n/a	n/a	11 (48)
No	n/a	n/a	11 (48)
PI or Investigator**
Yes	n/a	n/a	16 (70)
No	n/a	n/a	7 (30)

^**Represents physician participants who report being the principal investigator (PI) or investigator in a current or past clinical trial

^aMissing demographic data for one parent

^bMissing demographic data for physicians (age 2 physicians), (ethnicity 3 physicians), (medical education 1 physician)