Table 2. Feasibility and acceptability of early infant screening for SCD.
Feasibility and acceptability variables | Number of participants (N = 291) | Percentage (%) |
---|---|---|
Mothers who accepted to be screened for Hb genotype | 165 | 56.7 |
Children who were accepted to be screened for Hb genotype by mothers) | 250 | 85.9 |
Reasons for wanting self/child to be screened* | ||
Just to know my genotype and that of my child | 231 | 91.7 |
Have a child with SCD | 3 | 1.2 |
Had a child with SCD but late | 0 | 0.0 |
My spouse and I are both carriers of SCD haemoglobin | 3 | 1.2 |
The screening is free for me and my child | 148 | 59.0 |
Other reason | 7 | 3.8 |
Reasons for not wanting self/child to be screened* | ||
I know my genotype | 94 | 80 |
I know my child’s genotype | 3 | 2.6 |
My husband and I are both AA | 40 | 34.5 |
To avoid being worried | 4 | 3.4 |
Don’t want my child to be pricked/bled | 27 | 23.3 |
Will take time for the result to be ready | 7 | 6.1 |
Do not like free test | 3 | 2.7 |
Other reasons | 8 | 9.1 |
Appropriate time a child should be screened for Hb | ||
During pregnancy | 38 | 13.0 |
Soon after birth | 67 | 23.0 |
Within the first one-month of birth | 105 | 36.1 |
Pre-school | 43 | 14.8 |
Others | 20 | 6.9 |
Don’t know | 18 | 6.2 |
Willingness to enrol the child in SCD clinic immediately if SS/SC after testing | 283 | 97.3 |
Willingness to pay ₦540.00(US$1·50) for rapid screening test | 243 | 83.5 |
Affordability to pay ₦540.00(US$1·50) for rapid screening test | 239 | 82.1 |
Willingness to pay ₦7,000.00 (US$20) for confirmatory Hb test) | 190 | 65.3 |
Affordability to pay ₦7,00.00 (US$20) for confirmatory Hb test | 143 | 49.1 |
Perceived challenges for early infant screening for Hb* | ||
Cost of the confirmatory test at ₦7,000.00 (US$20) | 190 | 65.3 |
Availability of test facility | 155 | 53.3 |
Delay in getting the test result | 149 | 51.2 |
Availability/accessibility for follow up care | 148 | 50.9 |
Accessibility to test result | 147 | 50.5 |
Time committed to counselling and testing | 147 | 50.5 |
Cost of screening test at ₦540.00(US$1.50) | 101 | 35.3 |
Fear of knowing the SCD status of the child | 86 | 29.6 |
Other reasons | 22 | 9.6 |
* multiple answers applied