TABLE 1.
Characteristics of the Study Sample Overall and by Tertiles of the Overall CAPACITY Scale Score
| Variables | n (%) |
||||
|---|---|---|---|---|---|
| Overall | Tertile 1 (lowest) | Tertile 2 | Tertile 3 (highest) | P* | |
| N | 1746 | 604 | 563 | 579 | |
| CAPACITY scale | |||||
| Total score [mean (SD)] | 2.4 (0.6) | 1.7 (0.2) | 2.3 (0.1) | 3.1 (0.4) | NA |
| Median (Q1, Q3) | 2.3 (1.9, 2.8) | 1.8 (1.6, 1.9) | 2.3 (2.2, 2.4) | 3.0 (2.8, 3.4) | |
| Communication domain [mean (SD)] | 3.1 (0.7) | 2.3 (0.5) | 3.2 (0.3) | 3.7 (0.3) | NA |
| Median (Q1, Q3) | 3.2 (2.7, 3.7) | 2.3 (2.0, 2.7) | 3.2 (3.0, 3.5) | 3.7 (3.5, 4.0) | |
| Capacity domain [mean (SD)] | 1.6 (0.8) | 1.1 (0.1) | 1.3 (0.3) | 2.5 (0.8) | NA |
| Median (Q1, Q3) | 1.3 (1.0, 2.0) | 1.0 (1.0, 1.2) | 1.2 (1.0, 1.5) | 2.3 (1.8, 3.0) | |
| Patient characteristics | |||||
| Cognitive status (TICS-M) [mean (SD)] | 20.4 (6.2) | 21.4 (6.2) | 20.8 (5.7) | 18.9 (6.5) | < 0.001 |
| Impairment level | < 0.001 | ||||
| Mild cognitive impairment | 1264 (72.4) | 469 (77.6) | 423 (75.1) | 372 (64.2) | |
| Dementia | 482 (27.6) | 135 (22.4) | 140 (24.9) | 207 (35.8) | |
| General health status (self-assessed) [mean (SD)] | 2.5 (1.0) | 2.5 (1.0) | 2.6 (1.0) | 2.5 (1.0) | 0.66 |
| Education | 0.03 | ||||
| High school graduate or less | 278 (15.9) | 79 (13.1) | 82 (14.6) | 117 (20.2) | |
| Some college | 439 (25.1) | 156 (25.8) | 139 (24.7) | 144 (24.9) | |
| Bachelor’s degree | 409 (23.4) | 139 (23.0) | 138 (24.5) | 132 (22.8) | |
| Graduate degree | 620 (35.5) | 230 (38.1) | 204 (36.2) | 186 (32.1) | |
| Care partner characteristics | |||||
| Health literacy [mean (SD)] | 4.5 (0.9) | 4.6 (0.9) | 4.6 (0.9) | 4.5 (0.9) | 0.19 |
| Age group | 0.07 | ||||
| < 75 | 1152 (66.0) | 375 (62.1) | 380 (67.5) | 397 (68.6) | |
| 75–84 | 539 (30.9) | 203 (33.6) | 167 (29.7) | 169 (29.2) | |
| 85+ | 55 (3.2) | 26 (4.3) | 16 (2.8) | 13 (2.2) | |
| Age [mean (SD)] | 70.3 (9.6) | 71.0 (9.9) | 70.2 (9.0) | 69.5 (9.7) | 0.01 |
| Male | 565 (32.4) | 213 (35.3) | 154 (27.4) | 198 (34.2) | 0.008 |
| Race, White | 1673 (95.8) | 582 (96.4) | 543 (96.4) | 548 (94.6) | 0.23 |
| Education | 0.41 | ||||
| High school graduate or less | 246 (14.1) | 93 (15.4) | 72 (12.8) | 81 (14.0) | |
| Some college | 502 (28.8) | 171 (28.3) | 150 (26.6) | 181 (31.3) | |
| Bachelor’s degree | 478 (27.4) | 169 (28.0) | 159 (28.2) | 150 (25.9) | |
| Graduate degree | 520 (29.8) | 171 (28.3) | 182 (32.3) | 167 (28.8) | |
| Patient is spouse/significant other | 1556 (89.1) | 545 (90.2) | 510 (90.6) | 501 (86.5) | 0.049 |
| Employment, hours per wk | 0.88 | ||||
| Part-time | 260 (14.9) | 87 (14.4) | 89 (15.8) | 84 (14.5) | |
| Full-time | 156 (8.9) | 50 (8.3) | 51 (9.1) | 55 (9.5) | |
| Not working or don’t know/refused | 1330 (76.2) | 467 (77.3) | 423 (75.1) | 440 (76.0) | |
| Time providing care for the patient | < 0.001 | ||||
| 05 h or fewer a wk | 521 (29.8) | 214 (35.4) | 170 (30.2) | 137 (23.7) | |
| 06–19 h a wk | 241 (13.8) | 64 (10.6) | 81 (14.4) | 96 (16.6) | |
| 20–39 h a wk | 98 (5.6) | 25 (4.1) | 33 (5.9) | 40 (6.9) | |
| 40 or more hours a wk | 82 (4.7) | 13 (2.2) | 32 (5.7) | 37 (6.4) | |
| Not providing care or don’t know/refused | 804 (46.0) | 288 (47.7) | 247 (43.9) | 269 (46.5) | |
| General health status (self-assessed) [mean (SD)] | 2.4 (0.9) | 2.5 (1.0) | 2.3 (0.9) | 2.4 (0.9) | 0.08 |
| Depression (PHQ-2) | 127 (7.3) | 56 (9.3) | 41 (7.3) | 30 (5.2) | 0.03 |
| Subjective burden (Zarit) [mean (SD)] | 10.8 (7.9) | 10.6 (7.8) | 11.0 (7.8) | 10.8 (8.0) | 0.55 |
| Cognitive status (TICS-M) [mean (SD)] | 27.9 (5.0) | 27.8 (4.6) | 28.0 (5.4) | 27.9 (5.0) | 0.25 |
| Accompanies patient to PCP or specialist appointments most of the time or always | 1557 (89.2) | 483 (80.0) | 515 (91.5) | 559 (96.5) | < 0.001 |
*
Generated from Pearson x2 tests for categorical variables and from Kruskal-Wallis tests for continuous variables.
CAPACITY indicates CAregiver Perceptions About Commun/ca7ion with Clinical Team members; NA, not available; PCP, primary care provider; PHQ-2, Patient Health Questionnaire 2; Q, quartile; TICS-M, Modified Telephone Interview Cognitive Status.