Table 1.

Baseline demographic and health status characteristics of the patients for each enrolled family.

Patient characteristics			Cystic fibrosis (n=51)		Inflammatory bowel disease (n=37)		Full sample (N=88)
Patient age (years), mean (SD)			10.55 (6.01)		15.70 (4.02)		12.72 (5.82)
	0-2, n (%)	7 (14)		1 (3)		8 (9)
	3-12, n (%)	24 (47)		9 (24)		33 (38)
	12-21, n (%)	20 (39)		27 (73)		47 (53)
Patient gender, n (%)
	Female	24 (47)		22 (60)		46 (52)
	Male	27 (53)		15 (40)		42 (48)
Patient race, n (%)
	White	49 (96)		35 (95)		84 (96)
	Black or African American	0 (0)		2 (5)		2 (2)
	Other	2 (4)		0 (0)		2 (2)
Disease indicators, mean (SD)
	Mean forced expiratory volume in 1 second percent predicteda,b (cystic fibrosis only, n=38)	96.89 (19.69)		—c		—c
	Disease type (inflammatory bowel disease only)	—d		Crohn: 29 (78%) Ulcerative Colitis: 8 (22%)		—d
	Physicians global assessment score (inflammatory bowel disease only)	—d		Continuous Remission: 10 (27%) Remission: 14 (38%) Mild: 11 (30%) Moderate: 2 (5%)		—d
Family income (US $), n (%)
	<25,000	4 (8)		3 (8)		7 (8)
	25,000 to 49,999	12 (24)		1 (2)		13 (15)
	50,000 to 74,999	8 (15)		5 (14)		13 (15)
	75,000 to 99,999	9 (18)		7 (19)		16 (18)
	≥100,000	15 (29)		14 (38)		29 (33)
	Unknown	3 (6)		7 (19)		10 (11)

^aScores ranged between 48 and 127.

^bNot all participants were old enough to reliably complete pulmonary function testing.

^cMeasure not applicable for patients with inflammatory bowel disease.

^dMeasure not applicable for patients with cystic fibrosis.