Table 2.

Mean hours (SD) of informal caregiving provided daily to patients with SMA by type of SMA.

Activity	Type I		Type II		Type III		All
	Main Caregiver	All Caregivers	Main Caregiver	All Caregivers	Main Caregiver	All Caregivers	Main Caregiver	All Caregivers
Basic hygiene, dressing	1.82 (1.01)	3.23 (2.18)	1.26 (1.11)	1.62 (1.2)	0.58 (0.36)	0.91 (0.58)	1.2 (1.04)	1.73 (1.48)
Feeding the patient	1.61 (1.88)	2.5 (2.67)	1.33 (1.45)	1.71 (1.92)	0.45 (0.63)	0.69 (1.09)	1.18 (1.43)	1.61 (1.97)
Bathing or showering	0.86 (0.53)	1.61 (1.16)	0.7 (0.6)	1 (0.96)	0.38 (0.36)	0.71 (0.64)	0.66 (0.56)	1.03 (0.96)
Helping the patient to move	1.18 (0.9)	2.05 (1.21)	2.15 (2.38)	2.75 (2.71)	0.74 (1.32)	1.39 (2.61)	1.68 (2.08)	2.34 (2.54)
Total BADL	5.47 (2.71)	9.38 (4.77)	5.44 (3.71)	7.08 (4.42)	2.15 (2.34)	3.71 (4.52)	4.72 (3.54)	6.71 (4.78)
Cooking and preparing special meals	0.82 (0.72)	1.55 (1.27)	0.65 (0.82)	0.91 (1.12)	0.18 (0.36)	0.25 (0.49)	0.57 (0.75)	0.87 (1.1)
Administering drugs/minor cures	1.18 (0.84)	1.98 (1.58)	1.07 (1.19)	1.35 (1.47)	0.64 (1.31)	0.83 (1.53)	0.99 (1.17)	1.33 (1.52)
Other IADL a	0.03 (0.1)	0.03 (0.1)	0.02 (0.14)	0.05 (0.3)	0 (0)	0 (0)	0.02 (0.12)	0.03 (0.24)
Total IADL	2.03 (1.12)	3.55 (2.17)	1.74 (1.59)	2.31 (2.18)	0.83 (1.3)	1.08 (1.51)	1.59 (1.5)	2.24 (2.16)
Other activities directly related to the disease	0.8 (0.73)	1.39 (1.25)	0.68 (1.12)	1.09 (1.72)	0.17 (0.36)	0.8 (1.49)	0.59 (0.96)	1.08 (1.59)
All activities	8.3 (3.6)	14.32 (6.94)	7.86 (4.8)	10.48 (6.41)	3.14 (2.42)	5.59 (4.73)	6.89 (4.62)	10.02 (6.68)

Note: time of informal care was capped at a maximum of 16 h per day per caregiver. ^a Other IADL included the time spent on medical visits, diagnostic tests, traveling, financial, administrative or legal affairs and social and leisure activities.