Table 1.
Outcomes | Outcome measures | |
---|---|---|
Diagnosis | Early diagnosis | Assessment of SpondyloArthritis Society criteria; New York criteria The Classification Criteria for Psoriatic Arthritis; Moll and Wright criteria Rheumatologist’s/dermatologist’s (clinical) judgement Not defined (‘standard diagnostic criteria for inflammatory bowel diseases and rheumatic diseases’) |
Diagnosis delay | The total lag time from joint symptom onset to the first rheumatological assessment Diagnostic delay: the time interval between the onset of symptoms and the correct diagnosis being made Physician-related diagnostic delay: the time interval between the initial visit to a physician and the time of diagnosis |
|
Reclassification of diagnosis | Number of patients, n (%) | |
Disease related | Disease activity | Musculoskeletal: • The Bath Ankylosing Spondylitis Disease Activity Index • The Ankylosing Spondylitis Disease Activity Score – C-reactive protein • Disease Activity in Psoriatic Arthritis Gastroenterology: • Crohn’s disease activity index • the partial Mayo Psoriasis: • Psoriasis Area Severity Index |
Physical function | Bath Ankylosing Spondylitis Metrology Index Bath Ankylosing Spondylitis Functional Index Bath Ankylosing Spondylitis Patient Global Score Health Assessment Questionnaire |
|
Comorbidities | Prevalence of diabetes, hypertension, hyperlipidaemia and current/past smoking status | |
Complications during follow up/adverse events | Prevalence of infection and adverse medication effects (i.e. elevated liver function test, headache) | |
Treatment | Therapeutic adjustment | Number of patients, n (%) having had their treatment changed |
Patient reported outcomes | Quality of life | Inflammatory Bowel Disease Questionnaire Short Form (SF36) Dermatology Life Quality Index Psoriatic Arthritis Impact of Disease |
Global wellness | • Health Assessment Questionnaire • Short Form (SF36) • Patient Global Assessment |
|
Patient global assessment | Patient Global Assessment | |
Activity limitations and participation restrictions | The Canadian Occupational Performance Measure | |
Patient satisfaction | Satisfaction questionnaire (developed by the multidisciplinary team) | |
Feasibility/costs | Health service utilisation | Questionnaire developed by the Stanford University School of Medicine with four indicators (i.e. outpatient visits, emergency visits, hospitalisations and hospitalisation days) |