TABLE 1.
Participant characteristics for the samples of each outcome
| Questionnaire and sample size | Pre‐COVID‐19 or COVID‐19 period | Age child in years; mean (SD) | Gender child girl/boy; n (%) | Time since diagnosis in years; mean (SD) | Diagnosis group: solid tumor/CNS tumor/hematological cancer; n (%) | In/after treatment; n (%) |
|---|---|---|---|---|---|---|
| PedsQL generic proxy report (n = 364, 60 repeated reports) | Pre‐COVID‐19 (n = 213) | 5.1 (1.6) | 91/122 (43/57) | 2.1 (1.4) | 86/34/93 (40/16/44) | 78/135 (37/63) |
| COVID‐19 period (n = 211) | 5.0 (1.6) | 89/122 (42/58) | 2.1 (1.4) | 78/39/94 (37/19/45) | 87/124 (41/59) | |
| PedsQL fatigue proxy report (n = 230, 31 repeated reports) | Pre‐COVID‐19 (n = 136) | 5.4 (1.6) | 57/79 (42/58) | 2.7 (1.4) | 61/21/54 (45/15/40) | 0/136 (0/100) a |
| COVID‐19 period (n = 125) | 5.3 (1.5) | 50/75 (40/60) | 2.7 (1.3) | 59/19/47 (47/15/38) | 0/125 (0/100) a | |
| PedsQL generic self ‐report (n = 359, 56 repeated reports) | Pre‐COVID‐19 (n = 219) | 13.6 (3.0) | 97/122 (44/56) | 2.9 (2.9) | 57/67/95 (26/31/43) | 70/149 (32/68) |
| COVID‐19 period (n = 195) | 13.2 (3.0) | 94/102 (48/52) | 2.9 (2.7) | 49/53/93 (25/27/47) | 71/124 (36/63) | |
| PedsQL fatigue self ‐report (n = 241, 36 repeated reports) | Pre‐COVID‐19 (n = 151) | 13.6 (3.1) | 67/84 (44/56) | 3.6 (3.1) | 35/56/60 (23/37/40) | 0/151 (0/100) a |
| COVID‐19 period (n = 126) | 13.2 (3.1) | 66/60 (52/48) | 3.5 (2.7) | 36/42/48 (29/33/38) | 0/126 (0/100) a |
| Questionnaire and sample size | Pre‐COVID‐19 or COVID‐19 period | Age caregiver in years; mean (SD) | Gender caregiver female/male; n (%) | Time since diagnosis in years; mean (SD) | Diagnosis group: solid tumor/CNS tumor/hematological cancer; n (%) | In/after treatment; n (%) |
|---|---|---|---|---|---|---|
| DT‐P (n = 681 caregivers, of 530 children) | Pre‐COVID‐19 (n = 376) | 41.6 (7.3) | 247/129 (66/34) | 2.9 (2.2) | 117/88/171 (31/23/46) | 110/266 (29/71) |
| COVID‐19 period (n = 309) | 41.4 (7.0) | 206/103 (67/33) | 2.9 (2.0) | 104/83/122 (33/27/40) | 88/221 (29/71) |
Abbreviations: CNS: central nervous system; DT‐P: distress thermometer for parents; PedsQL: pediatric quality‐of‐life inventory; SD: standard deviation.
a
PedsQL fatigue was only assessed in children after treatment.