Table 1.

Home motor assessment tasks

	Task	Testing details
1	Climbing and descending 4 stairs	Time measurement
2	Standing up from the chair	Quality of the movement: able to stand up with arms folded/to stand up with help or altered starting position/unable to stand up
3	Rising up from the floor	Time measurement and quality of the movement: standing up without Gower’s maneuver/presents at least one of the Gower’s components/a need of external support or unable to perform
4	Lifting head from supine position	Chin moves to chest/head is lifted but through side flexion or with no neck flexion (protraction)/unable to lift head
5	Bringing plastic cup to mouth	Full/empty/unable to perform
6	Picking up 6 coins to one hand	Time measurement

Notes: Tasks 2, 3 and 4 performed according to North Star Ambulatory Assessment (NSAA) manual [25]; Families were also asked to share a photograph of patient’s posture (undressed) while standing/sitting in 3 projections (anterior, posterior and lateral view), as well as a photograph of passive ankle dorsiflexion lying prone. All parents received video with the instructions of how the assessments should be performed