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. 2020 Jul 17;14(5):860–867. doi: 10.1177/1932296820942258

Table 2.

Patient and Provider Comments.

Patient survey Provider survey
Improved quality of life
“Life-changing”
“Life-saving”
“I’ll live longer”
“Better relationship with my teen”
“I feel normal”
“Much less work”
Patients have a right to try new technology
“Patients have a right to these advances”
“Providers have very little control over how patients actually use their insulin”
“We cannot hold people back because we may not understand something”
“Diabetes is not without risk no matter what the treatment”
Improved sleep quality
“We all sleep!”
“Sleep is amazing”
“Much more sleep”
Risks related to patient operation of do-it-yourself artificial pancreas system
Concern regarding “Patients using it without understanding it”
Some patients “don’t know how to troubleshoot or make adjustments”
Improvement over other options
“Light years ahead”
“Better than 670 g”
“Never going back”
“Closest to a cure”
Providers need further training
“I wish we had more training on DIY”
“Need more tools for providers to understand & troubleshoot”
“This is the first I have actually heard of this”
“Need more education on the system”
Resource-intensive setup process
“Great, some frustration”
“Much experimentation required”
Adoption is limited to only certain patients
“These systems are very expensive”
“The T1D patients I know who are using them are tech savvy and sophisticated in their self-care”
“In the community I work my patients don’t have the intellect needed to understand and manage these systems.”
“It’s limited to those with the financial means and self-education to do it”
Generally positive
“Community-driven miracle”
“Amazing”
“Best thing ever”
“Our greatest blessing”

Patients were asked: “In three words, please describe your artificial pancreas system.” Providers were asked: “Please describe any other thoughts you have regarding patients with diabetes implementing do-it-yourself closed loop artificial pancreas systems.” These comments are representative examples and do not include all responses received.