Table 1.
Qualitative interview participants
| Participant pseudonym | Age | Gender | Ethnicity | Religious faith | Affected children/total children | Relationship to thalassemia | How thalassemia discovered |
|---|---|---|---|---|---|---|---|
| Yazeed | 52 | M |
Asian (Pakistani) |
Muslim | 0/5 | AwTh, FM | Symptoms |
| Rima | 25 | F |
Asian (Lebanese) |
Eastern Orthodox | 0 | AwTh | Symptoms |
| Ameena | 38 | F |
Asian (British Indian) |
Muslim | 1/4 | SiTC, FM | Screening |
| Giovanni | 36 | M |
European (Italian) |
Catholic | 0 | AwTh, FM | Symptoms |
| Farrah | 33 | F |
Asian (Pakistani) |
Muslim | 3/3 | SiTC, FM | Screening |
| Sa'id | 45 | M |
Asian (Iraqi) |
Muslim | 0/5 | AwTh | Symptoms |
| Nasarin | 25 | F |
Asian (Iranian) |
Muslim | 0 | AwTh, FM | Symptoms |
| Safina | 36 | F | Asian (Bangladeshi) | Muslim | 0 | AwTh | Symptoms |
| Deeba | 49 | F |
Asian (Pakistani) |
Muslim | 1/2 (adopted) | FM | Child's symptoms |
| Aarav | 68 | M |
Asian (British Indian) |
Hindu | 1/1 | SiTC, FM | Child's symptoms |
| Jamini | 52 | M |
Asian (British Indian) |
Hindu | 1/2 | SiT, FM | Child's symptoms |
| Zania | 44 | F | European (Sardinian) | Catholic | 0 | AwTh | Symptoms |
| Maryam | 35 | F |
European (Greek Cypriot) |
Greek Orthodox | 0 | AwTh | Symptoms |
| Afra | 40 | F |
Asian (Pakistani) |
Muslim | 1/2 | SiTC, FM | Newborn screening |
| Arjun | 41 | M |
Asian (British Pakistani) |
Muslim | 1/4 | SiTC, FM | Screening |
| Daania | 36 | F |
Asian (Afghani) |
Muslim | 0/0 | SiTC | Screening |
| Talia | 35 | F |
European (Italian/Maltese) |
Catholic | 0/1 | SiTC, FM | Screening |
| Mishel | 21 | F |
Asian (Armenian) |
Muslim | 0/0 | SiTC | Screening |
| Sophie | 29 | F | White British | Christian | 0/0 | SiTC | Screening |
| Xanthe | 34 | F |
European (Greek Cypriot) |
Greek Orthodox | 0/0 | SiTC | Screening |
Abbreviations: AwTh, adult with thalassemia; FM, family member; SiTC, screen‐identified thalassemia carrier.