Table 2.
Category | Example, citations | All women (n = 207) |
Women diagnosed with cervical cancer (n = 130) | Women diagnosed with ovarian cancer (n = 57) | Women diagnosed with other gynecologic cancersa (n = 20) |
---|---|---|---|---|---|
Recording units n (%) |
Recording units n (%) |
Recording units n (%) |
Recording units n (%) |
||
Unmet long-term supportive care needs |
”Everyone ignores the child/infertility viewpoint, it’s not so fun to go from what I at least thought fertile to infertile. Psychologically this is a trauma, but it feels like no one wants to understand.” “I think there’s a lack of a more holistic view of people in healthcare. The body is treated with such finesse, but the mental parts are left aside.” “A lack of information I needed. In my case hysterectomy and I was shocked by the problems after the operation and regretted it immediately and still do.” |
138 (66.7) | 82 (63.1) | 46 (80.7) | 10 (50.0) |
Satisfying long-term supportive care |
”About 8 months after end-of-treatment I participated in a cancer rehabilitation group. We were a group that met about twice a week. Once a week we trained with a physiotherapist and once a week we had group sessions with counsellors. I thought this was incredibly good.” “It has been very nice to have the same doctor during all my follow-up appointments. I’ve also been able to reach her via telephone when I have been wondering about things. Very good to meet a counsellor, someone external, to talk with – until I felt I was “done” with the trauma.” |
54 (26.1) | 35 (26.9) | 8 (14.0) | 7 (35.0) |
Health care organizational difficulties |
”I had 4–5 doctors during a one-year period and it felt very insecure and impersonal.” “Help in hurrying up the healthcare would be needed. It shouldn’t take four weeks to get answers from a scan when they say it should take two weeks.” |
58 (28.0) | 39 (30.0) | 14 (24.6) | 5 (25.0) |
aOther = Endometrial (n = 16), pelvic (n = 1), and vulvar cancer (n = 3)