Table 1.

Demographics of informants

Characteristics	Classification	N
Gender	Men	10
	Women	10
Age	18–39	2
	40–64	11
	65–79	7
Ethnicity	Swedish	18
	European	0
	Outside of Europe	2
Marital status	Single	4
	Cohabiting	16
Level of education	None	1
	Elementary school	3
	Upper secondary school	10
	University	6
Employment	Student/working	7
	Sick leave	3
	Retired	5
	Disability pension	3
	Other	2
Child Pugh score a	A	13
	B	4
	C	3
Aetiology of liver cirrhosis	Alcohol	4
	Hepatitis B/C	2
	Primary Biliary Cholangitis	1
	Primary Sclerosing Cholangitis	4
	Autoimmune hepatitis	2
	Nonalcoholic steatohepatitis	5
	Cryptogenic	1
	Overlap Autoimmune hepatitis/ primary biliary cholangitis	1
Time since liver cirrhosis diagnosis	6–11 months	3
	1–2 years	2
	3–4 years	7
	5–10 years	6
	>10 years	2
Hepatic encephalopathy b	None	12
	Asymptomatic or mild	8

^aAlgorithm based on albumin, bilirubin, INR, presence of ascites and hepatic encephalopathy. Median 2‐year survival rate Child Pugh A: 85% B: 60% and C: 35% (Durand & Valla, 2008).

^bDetected with Psychometric hepatic encephalopathy score, score <−4 was cut‐off for asymptomatic or mild hepatic encephalopathy (Weissenborn et al., 2001). Symptomatic hepatic encephalopathy was assessed according to the West Haven criteria (American Assiciation for the Study of Liver Diseases and the European Association for the study of the Liver, 2014).