Table 2.
Categories | Sub‐themes | Theme of meaning |
---|---|---|
From unnoticeable to noticeable disease From gradual to quick progression |
Varying levels of deterioration | Life turns into an unpredictable roller coaster |
Optimise health based on requirements and ability Become dependent on relatives |
Adapting to a new life situation | |
Worry about the future Loss of social relations Find it difficult to talk about the disease Feel apathetic and depressed Relate to a potentially fatal disease |
Feeling emotionally and existentially distressed | |
Feel ashamed Feel guilt |
Feeling stigmatised |