Table 2. Stakeholder reporting of facilitators, barriers, and solutions related to FH care.
Facilitators | ||
Patient-level | Clinician-level | |
• Great medical team • Good understanding of FH • Useful resources for FH |
• Good knowledge of available treatments • Good understanding of genetic results • Clear diagnostic criteria for FH |
|
Barriers | ||
|
Clinician-level | |
Medical care-related | • Changing guidelines • Experiencing care gaps • Nondisclosure of family history |
• Lack of sufficient evidence to support some methods of identification or treatment • Lack of awareness of FH |
Medication-related | • Lack of insurance coverage for treatments • Lack of awareness of other treatments • Reluctance to take other treatments • Side effects experienced |
• Difficulty convincing patients to adhere to prescribed medications • Lack of awareness of other treatments |
Life-related | • Competing family demands • Loss of job/health insurance • Competing personal demands (e.g., other illnesses) |
• Busy clinics (e.g., high patient volumes) • Lack of a cohesive medical record |
Suggested solutions | ||
Patient-level | Clinician-level | |
• Patient education about FH • Childhood screening for FH • Data availability to patient • Doctors’ persistence in treatment recommendations • Creation of a peer group • Increased awareness of FH • Health policy changes |
• Clinician education about FH • Clinician champions |