Table 1.
Community Engagement Studio Topics, Participants, and Focus.
| Research topic | Community engagement studio participants | Studio focus |
|---|---|---|
| Deep brain stimulation in early stage Parkinson disease | Men, age 50-65 with Parkinson disease diagnosis for 4 years or less (n = 7) | Research ethics, implementation, research design, recruitment |
| Symptom management smartphone application for head and neck cancer patients | A diverse group of patients with chronic conditions where the pain is a factor (n = 7) | Consent, implementation, intervention design |
| Improving healthcare systems | Patients who have been hospitalized in the previous 3-5 years and have experienced adverse events/s that impacted care (n = 9) | Research design, implementation |
| Exploring patient and provider perceptions of the needs of patients with Sickle cell trait | Individuals who have the sickle cell trait or are caregivers for people with the trait (n = 7) | Recruitment, research design |
| Center for excellence in precision medicine and health equity | Hispanic adults (n = 8) | Implementation, dissemination |
| Community assessment of a REDCap-based model of eConsent | A diverse population of patients. (n = 9) | Consent documents and process, ethical considerations |
| HIV+ adults not engaged in care | Individuals who have been diagnosed with HIV/AIDS who have a history of poor adherence and noncompliance (n = 5) | Ethical considerations, program design |
| Social and behavioral determinants of health and missed HIV health care provider visits | A diverse group of patients (n = 7) | Ethical considerations, implementation, recruitment |
| APOL 1 genetic testing in African Americans | African Americans with kidney disease (n = 9) | Ethical considerations, recruitment |
| Assessing the educational needs of ICU survivors | ICU survivors and caregivers (n = 10) | Program design, implementation, dissemination |
| Diabetes stigma | A diverse group of individuals with type 2 diabetes (n = 8) | Survey design |
| Patient engagement in breast imaging | A diverse group of women older than 40 (n = 9) | Ethical considerations, program design, implementation |
| Improving oral health and diabetes outcomes | Dental providers and insurance representatives who serve at-risk and predominantly African American communities (n = 5) | Research design, implementation, recruitment |
Abbreviation: ICU, intensive care unit.