Table 1.
Young people with Epilepsy survey (n = 71) | Caregiver survey (n = 130) | |
---|---|---|
Age of young person | Range 12−25 years Mean 20.76 SD 3.482 |
Range 0−25 years Mean 8.88 SD 5.515 |
Gender of person with epilepsy | ||
Female | 61 (86) | 64 (49%) |
Male | 10 (14%) | 66 (51%) |
Gender of Caregivers | ||
Female | N/A | 128 (98%) |
Male | N/A | 2 (2%) |
Learning/behavior One or more neurodevelopmental, learning or mental health problem |
51 (72%) | 63 (48%) |
Age of diagnosis of epilepsy | Range 0.17−24years Mean12.04 SD 5.38 |
0−18 years Mean 5.13 SD 4.13 |
Duration of Epilepsy | 0−22 years Mean = 8.89 years SD 5.82 |
0−25 years Mean 3.75 SD 4.57 |
Anti-seizure Medications | ||
None | 2 (3%) | 6 (5%) |
One | 29 (41%) | 65 (50%) |
Two | 26 (37%) | 32 (25%) |
Three or more | 12 (17%) | 27 (21%) |
Don’t Know | 2 (3%) | 0 (0%) |
Emergency medication | ||
Yes | 28 (39%) | |
No | 41 (58%) | 73 (56%) |
Not known | 2 (3%) | 57 (44%) |