Skip to main content
. 2021 Sep 5;23(5):837–844. doi: 10.1038/s41436-020-01069-7

Table 2.

Characteristics of RUD patients described by family members.

n %
Number of RUD patients cared for
One 123 88.5%
Two 11 7.9%
More than two 5 3.6%
Total family member responses 139 100.0%
Patient’s relationship to family member
Child 139 89.7%
Spouse/domestic partner 7 4.5%
Parent 4 2.6%
Other family member 5 3.2%
Total patients describeda 155 100.0%
Patient age
Less than 1 year 17 11.0%
1–5 years 46 29.9%
6–10 years 29 18.8%
11–17 years 16 10.4%
18 and older 46 29.9%
Total patients describeda,b 154 100.0%
Lives in household of family member
Yes, full time 141 94.0%
Yes, part time 8 5.3%
No 1 0.1%
Total patients describeda,c 150 100.0%
a

Includes data for first RUD patient and second RUD patient, if reported by family member. Detailed data were collected on a maximum of two RUD patients per caregiver.

b

Data missing for one patient described by a family member.

c

Data missing for 5 patients described by a family member.