Table 3.

Importance of data sharing for adaptive deep brain stimulation (aDBS) research.

“I think the world of aDBS is still small, so the numbers that are being evaluated at individual sites are small, and there’s power in the data sharing to be able to have a broader sense or a broader scope of the disease process to be able to understand it better and to understand the signals better” (R_21).

“I think it’s going to take large numbers of patients with large numbers of recordings that are acquired in different settings to really try to get a handle on this

“I think teams, as they’re realizing that science is much more collaborative and team-based, I think that’s

“[T]here’s a lot of other ways that the data could be looked at. There’s a lot of other questions that we’re not even looking at that perhaps could be answered for the same disorder or many others” (R_19).

“[T]he more open and accessible it is, the more honest the science is, too, and the more honest everybody is about it. There shouldn’t be anybody feeling like they’re having to hide anything. It keeps everybody working in honest, compliant ways, I think” (R_04).