Table 7.

Potential solutions to various types of concerns.

Privacy

“I think the major consideration is how to be able to do that in a way that maintains privacy, yeah, just maintaining the privacy and keeping it within an approved set of investigators, perhaps somehow some approval process or some application process

Interpretation

“I think as repositories get set up, knowing the conditions of the collections and things, and standardizing that so you know what you’re getting so that you don’t get an overinterpretation of data is going to be super important” (R_12).

Ownership

“I’d like to see a little bit of a holding period, just for the people who collected it to be able to look at it. Those are the people who know it best. But beyond some reasonable holding period for those investigators, then it should be shared” (R_08).

Commercialization

“If we maybe see an improvement on something, we could discuss that with [the device manufacturer], and it could be patented, co-patented, or something like that” (R_13).

Lack of Resources

“I think developing or facilitating the secure transfer of information” (R_16).