Table 5.
Preference for SDM.
| Author, Year (Reference) | EoL Care Measure | Scenario | Type of Condition | Participants, n | Answer Categories | Yes, n (%) |
|---|---|---|---|---|---|---|
| Who should be involved? | ||||||
| Agard, 2000 [26] | SDM related to CPR | R | CHF (NYHA II-IV) + CM | 40 | Patient | 5 (12) |
| Physician | 15 (37) | |||||
| Both | 18 (47) | |||||
| Chan, 2007 [28] | SDM related to LST (non-specified) | H | MM | 287 | Patient | 66 (23) |
| Family | 27 (9) | |||||
| Physician | 107 (37) | |||||
| Depends | 88 (31) | |||||
| Panocchia, 2017 * [44] | SDM related to CPR, MV or PEG | H | ESRD + CM | 34 | Family | 31 (91) |
| Who should decide? | ||||||
| Chan, 2007 [28] | SDM related to LST (non-specified) | H | MM | 287 | Patient | 48 (17) |
| Family | 15 (5) | |||||
| Physician | 142 (50) | |||||
| Depends | 82 (29) | |||||
| Fuseya, 2019 [31] | SDM related to CPR/MV | R | COPD (severe) + CM | 162 | Patient | 39 (24)/39 (24) |
| Family | 23 (14)/22 (14) | |||||
| Physician | 71 (44)/68 (42) | |||||
| No answer/Do not know | 27 (17)/31 (19) | |||||
| Jerpseth, 2018 [37] | SDM related to MV or NIV | R | COPD (GOLD III-IV) + CM | 12 | Patient | 10 (83) |
| Physician | 2 (17) | |||||
| Naik, 2016 [41] | SDM related to EoL care | H | Advanced cancer + CM | 146 | Collaborative decision making (including family and physician) | 32–146 (22–100) ° |
| Nath, 2008 [42] | SDM related to EoL care | R | MM (Frail) | 18 | Patient | 12–18 (60–100) ° |
| Panocchia, 2017 * [44] | SDM related to CPR/MV/PEG | H | ESRD + CM | 34 | Family or friend only in case of incapability | 25 (73) |
CM = Comorbidities; CHF = Chronic Heart Failure; COPD = Chronic Obstructive Pulmonary Disease; CPR = Cardiopulmonary Resuscitation; EoL = End of Life; ESRD = End-Stage Renal Disease; H = Hypothetical; LST = Life Sustaining Treatment; MM = Multimorbidity; MV = Mechanical Ventilation; n = number; PEG = Percutaneous Endoscopic Gastrostomy; R = Real; SD = Standard Deviation; SDM = Shared Decision Making. * Multiple answers were possible. ° Verbal counts were transformed into numbers according to Chang et al. approach [25].