Table 4.
Tool | Author | Patient characteristics | Professional characteristics | Type of healthcare organization | Format | Timing and setting |
---|---|---|---|---|---|---|
IPOS | Kane et al.28,29 | Patients attending nurse-led CHF clinics; (NYHA class III–IV, with HFrEF, or HF symptoms and either HFmrEF or HFpEF; fluency and literacy in English; sufficient cognitive function to complete the questionnaires; ⩾18 years of age. | Nurses specialized in heart failure | Two national tertiary referral centers | Paper format, on a clip board with a pen | Patients completed the IPOS while waiting to be reviewed at the nurse-led CHF disease management clinic, on arrival to the clinic |
NAT-PD:HF | Waller et al.31 | (1) HF of either systolic or diastolic etiology being managed by a MHFC, (2) receiving optimal therapy or documented intolerance, (3) hospitalized within the last 12 months for CHF, (4) understanding English to complete the questionnaires, and (5) emotionally and cognitively capable of participating. | Clinic staff members | Metropolitan referral hospital | One page tool assessment | In outpatient consultation or during admission (cardiology ward). A second staff member completed a second copy of the NAT: PD-HF during a second consultation for the same participant on the same day without discussing the patient or comparing responses with the first staff member |
NAT-PD:HF | Janssen et al.32 | CHF- outpatients, and if present their primary family caregiver. Patients had a diagnosis of CHF NYHA III or IV according to the ESC guidelines; scheduled to receive a home visit by a HFN; able to provide IC, complete written questionnaires or participate in interviews. Patients already known to the specialist PC team were ineligible. | Nurses specialized in heart failure | One university hospital | One page tool assessment | Usual care, home visit |
RADPAC | Thoonsen et al.34–38 | Patients with CHF, COPD or cancer who potentially could benefit from a palliative care approach | General practitioners | General practice | Set of indicators | To screen the medical records of all persons in their practice. General practitioners were also asked to use this screening instrument whenever new data of any patient with one of these three diseases became available |
HFNAQ | Davidson et al.39 | Patients with HF discharged from a hospital within 30 days. NYHA class I to IV, and willing to give IC and attend an educational and exercise program. Those with insufficient language skills and cognitive impairment were excluded from the study. | Cardiac clinical nurse specialist | A tertiary referral center with comprehensive cardiac surgery and inter-ventional cardiology services | Questionnaire | During an assessment to participate in a CHF-specific educational and exercise program Patients had the opportunity to complete HFNAQ with the nurse or take it home and return it within 7 days. |
NECPAL | Gastelurrutia et al.46 | All consecutive ambulatory patients attended in the CHF clinics of 3 university hospitals during a 4-month period were enrolled | Doctors and nursing staff | Three university hospitals | Questionnaire | During a scheduled ambulatory visit |
NECPAL | Orzechowski et al.45 | Patients > 35 years, hospitalized with a HF diagnosis NYHA III/IV or EF ⩽40% in the last 12 months. Exclusion criteria: inadequate cognitive conditions to respond adequately to questions, and absence of a responsible person capable of responding on their behalf. | Physicians | One tertiary hospital | Questionnaire, paper format | A cardiology ward.The researcher asked the NECPAL questions to the physician during routine care |
NYHA: New York Heart Association (class I-IV); IC: Informed Consent; CHF: Chronic Heart Failure; HFrEF: Heart Failure with reduced Ejection Fraction (EF<40%); HFmrEF: Heart Failure with midrange systolic function (EF 41-49%; HFpEF: Heart Failure with preserved systolic function (EF >50%); ESC: European Society of Cardiology; HFN: Heart Failure Nurse; EF: Ejection Fraction; MHFC: Multidisciplinary Heart Failure Clinic.