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. 2021 Jan 14;22:56. doi: 10.1186/s13063-020-04953-4

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© The Author(s) 2021

Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

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Fig. 1 — NYCKidSeq study design. The NYCKidSeq study involves two phases, a lead-in phase and a randomized controlled trial (RCT). Participants in both phases receive TGP and WGS testing and complete surveys at baseline, after result disclosure (ROR1 survey), and 6 months after result disclosure (ROR2 survey). In the lead-in phase, participants (N = 30) are enrolled into either the GUÍA feedback arm where participants complete a structured feedback interview after completion of the ROR1 survey or survey feedback arm where participants provide survey feedback after completing each survey. In the RCT phase, participants (N = 1100) are randomized to the GUÍA arm or the standard of care arm (SOC). Participants in the GUÍA arm receive result disclosure from genetic counselors using GUÍA versus participants in the SOC arm who receive SOC genetic counseling