Table 1.
Participant characteristics of those completing T1 survey and those completing all three survey timepoints
| T1 (n=569) | T1, T2 and T3 (n=377) | |||||||
| PLWD (n=61) | Current carers (n=219) | Former carers (n=66) | Older adults (n=223) | PLWD (n=37) | Current carers (n=149) | Former carers (n=39) | Older adults (n=152) | |
| N (%) | ||||||||
| Gender | ||||||||
| Female | 27 (44.3) | 168 (77.1) | 55 (83.3) | 137 (61.7) | 14 (37.8) | 118 (79.7) | 32 (82.1) | 90 (59.2) |
| Male | 34 (55.7) | 50 (22.9) | 11 (16.7) | 85 (38.3) | 23 (62.2) | 30 (20.3) | 7 (17.9) | 62 (40.8) |
| Ethnicity | ||||||||
| White | 58 (96.7) | 211 (96.3) | 65 (98.5) | 216 (98.2) | 35 (94.6) | 143 (96.0) | 38 (97.4) | 148 (98.7) |
| Other | 2 (3.4) | 8 (3.7) | 1 (1.5) | 4 (1.9) | 2 (5.4) | 6 (4.0) | 1 (2.6) | 2 (1.3) |
| Living situation | ||||||||
| Alone | 13 (21.3) | 33 (15.1) | 17 (26.2) | 79 (35.6) | 8 (21.6) | 18 (12.2) | 11 (28.9) | 59 (39.1) |
| With someone | 48 (78.7) | 185 (84.9) | 48 (73.8) | 143 (64.4) | 29 (78.4) | 130 (87.8) | 27 (71.1) | 92 (60.9) |
| Index of Multiple Deprivation Quintile | ||||||||
| 1 | 12 (23.1) | 54 (32.1) | 10 (19.2) | 61 (33.5) | 5 (16.1) | 35 (31.0) | 6 (19.4) | 39 (31.7) |
| 2 | 16 (30.8) | 50 (29.8) | 20 (38.5) | 44 (24.2) | 11 (35.5) | 34 (30.1) | 11 (35.5) | 29 (23.6) |
| 3 | 10 (19.2) | 32 (19.0) | 14 (26.9) | 37 (20.3) | 6 (19.4) | 20 (17.7) | 9 (29.0) | 26 (21.1) |
| 4 | 10 (19.2) | 14 (8.3) | 5 (9.6) | 26 (14.3) | 5 (16.1) | 11 (9.7) | 4 (12.9) | 18 (14.6) |
| 5 | 4 (7.7) | 18 (10.7) | 3 (5.8) | 14 (7.7) | 4 (12.9) | 13 (11.5) | 1 (3.2) | 11 (8.9) |
| Type of dementia | ||||||||
| Alzheimer’s | 20 (32.8) | 100 (46.5) | 6 (23.1) | 14 (37.8) | 75 (50.7) | 2 (20.0) | ||
| Mixed | 13 (21.3) | 49 (22.8) | 7 (26.9) | 6 (16.2) | 34 (23.0) | 4 (40.0) | ||
| Vascular | 11 (18.0) | 27 (12.6) | 4 (15.4) | 8 (21.6) | 18 (12.2) | 3 (30.0) | ||
| Other | 17 (27.9) | 39 (18.1) | 9 (34.5) | 9 (24.3) | 21 (14.1) | 1 (10.0) | ||
| Mean (SD), (range) | ||||||||
| Age | 70 (±10), (45–88) |
61 (±13), (23–89) |
64 (±14), (22–95) |
72 (±6), (65–90) |
72 (±10), (50–88) |
62 (±13), (23–89) |
65 (±13), (22–95) |
73 (±6), (65–90) |
| Years of education | 15 (±4), (4–25) |
16 (±4), (6–28) |
17 (±4), (10–29) |
17 (±4), (7–25) |
13 (±4), (4–20) |
16 (±4), (6–28) |
16 (±4), (10–29) |
16 (±4), (7–24) |
Five hundred and sixty-nine participants completed the survey at T1, with duplicates and missing cases removed. Three hundred and seventy-seven participants had completed all three survey timepoints, with duplicates and missing cases removed.
PLWD, People living with dementia.