| Mode |
Face‐to‐face advance care planning (ACP) conversations |
| Materials |
Information leaflets for parents to prepare for ACP conversations. These leaflets explain the concept of ACP and provide ACP questions they could think about before the conversation Information leaflet for children to prepare for the conversation. This little booklet contains fill in the blank line exercises, describing what is important to the child regarding living a good life, living with illness, facing the future, decision‐making and preferences for care and treatment Information brochure for clinicians to educate them about the ACP concept and to provide recommendations for integrating ACP into their daily practice Preparation card for clinicians to invite families for an ACP conversation Conversation guide for conversations with the child and parents to guide the conversation and pay attention to the voice of the child Conversation guide for conversations with parents Documentation format for use by healthcare professionals, children and parents Pocket guide for healthcare professionals summarising key elements of IMPACT
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| Location |
At home, inpatient or outpatient department |
| Schedule |
The conversation guide is designed so that it can be used for a one‐off conversation or split up into multiple conversations, depending on the needs of the child and family |
| Scripting |
The conversation guide structures the conversation and provides verbal examples for every part of the conversation. Verbal examples need to be adapted to the child's age and the family's circumstances |
| Participants’ characteristics |
Children living with life‐limiting conditions, their parents and families |
| Sensitivity to participants’ characteristics |
Information leaflets are tailored to children with life‐limiting conditions aged 10 y and above and parents of children with life‐limiting conditions of all ages |
| Interventionist characteristics |
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| Adaptability |
Language used during the conversation can be modified, based on the suggested script and skills learnt in the training The schedule of the conversation can be modified, depending upon patient readiness, disease progression or specific family circumstances
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| Treatment implementation |
At the end of the conversation, the next steps are defined Healthcare professionals document the conversation in the medical record Children and parents receive a sheet to document the conversation for their own records
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