FIGURE 1.

Thematic schema from concept elicitation interviews. The thematic schema displays the identified themes and subthemes: (i) feeling boxed in by the system (checking task-oriented boxes, surrendering to the weight of the system and being influenced by historical experiences); (ii) navigating dual lives (experiencing isolation and making trade-offs); (iii) acknowledging an evolving identity; (iv) respecting the individual as a whole person and (v) increasing individualization to enhance care. As indicated by the downward-directed arrow, the upside down triangle depicts how the themes of feeling boxed in by the system, navigating dual lives, acknowledging an evolving identity and respecting the individual as a whole person all point to care individualization as a vehicle by which to enhance care. The circular arrow connecting navigating dual lives, acknowledging an evolving identity and respecting the individual as a whole person reflects the interconnected nature of these three themes.