Table 1.
Participant characteristics a
| Characteristics | Concept elicitation (n=25) | Cognitive interviews (n=19) |
|---|---|---|
| Dialysis patient interviews, n | 13 | 9 |
| Age (years), median (range) | 54 (46–74) | 62 (36–72) |
| Female, n (%) | 6 (46.1) | 3 (33.3) |
| Race, n (%) | ||
| Black | 12 (92.3) | 6 (66.7) |
| White | 0 (0) | 2 (22.2) |
| Mixed | 1 (7.7) | 1 (11.1) |
| Dialysis vintage (years) | ||
| ≤1 | 1 (7.7) | 2 (22.2) |
| 2–5 | 4 (30.8) | 3 (33.3) |
| ≥6 | 8 (61.5) | 4 (44.4) |
| Education, n (%) | ||
| <High school | 2 (15.4) | 0 (0) |
| High school graduate | 8 (61.5) | 3 (33.3) |
| Some college | 2 (15.4) | 5 (55.5) |
| College graduate or more | 1 (7.7) | 1 (11.1) |
| Positive recall of dialogue about healthcare goals with dialysis care team, n (%) | 8 (61.5) | – |
| Interview duration (min), median (range) | 54 (34–82) | 44 (36–65) |
| Dialysis care partner interviews, n | 3 | 1 |
| Age (years), median (range) | 69 (53–79) | 60 |
| Female, n (%) | 3 (100) | 1 |
| Race, n (%) | ||
| Black | 2 (66.6) | 0 (0) |
| White | 1 (33.3) | 1 (100) |
| Dialysis vintage of patient (years), n (%) | ||
| ≤1 | 1 (33.3) | 0 (0) |
| 2–5 | 1 (33.3) | 0 (0) |
| ≥6 | 1 (33.3) | 1 (100) |
| Interview duration (min), median (range) | 47 (45–61) | 37 |
| Dialysis care provider interviews, n | 9 | 9 |
| Participant type, n (%) | ||
| Medical providerb | 4 (44.4) | 4 (44.4) |
| Dietitian | 2 (22.2) | 0 (0) |
| Social worker | 2 (22.2) | 3 (33.3) |
| Nurse | 1 (11.1) | 2 (22.2) |
| Time in role (years), median (range) | 4 (0.2–19) | 4 (0.2–14) |
| Time in dialysis care (years), median (range) | 11 (3–23) | 13 (2.5–23) |
| Positive interest in incorporating GDC into dialysis care, n (%) | 9 (100) | – |
| Interview duration (min), median (range) | 63 (54–85) | 58 (47–88) |
a
Thirteen (68%) cognitive debriefing interview participants were unique from concept elicitation interview participants. All characteristics data were self-reported by participants.
b
Medical provider participant type includes five unique physicians and one advanced practice provider.
GDC: goal-directed care.