Table 3.
Element | Patients and care partner suggestions | Care team member suggestions |
---|---|---|
Length | Keep as short as possible | Keep as short as possible but not at the expense of contextualizing examples |
Medium | Written and video | Written |
Terminology | Avoid medical terminology without description(s), even for terms used routinely in health care (e.g. care plan, confidentiality) | Emphasize dialysis-specific examples and include descriptions and definitions for key terms (e.g. person-centered, shared decision-making) |
Replace term ‘life goal’ with phrase ‘needs and priorities’ | Replace term ‘life goal’ with ‘personal goal’ and/or ‘needs and priorities’ | |
Content | Provide example meeting topics, potential life priorities and more preparation questions | Provide a succinct program introduction, overview and rationale |
Use empowering language about working together, creating/maintaining open communication and actively participating in the care plan meeting | Add a graphic that shows the differences in the problem- and priority-based approaches to care plans | |
Explain the potential benefit of discussing both medical and personal priorities and concerns during care plan meetings | Provide references for evidence-based support of program implementation | |
Explain why family and/or care partners might attend care plan meetings | Provide a step-by-step care plan meeting conversation guide to assist in eliciting patient priorities | |
Emphasize confidentiality of discussions occurring at care plan meetings | Provide example patient priorities, barriers and care plan actions | |
Provide note-taking space | Give examples of potential implementation challenges and possible solutions | |
Logistics | Provide advanced notice of upcoming care plan meetings with options for location, timing and attendees | Use private settings for the care plan meeting and include family and/or care partners if desired by the patient |
Perform a final review of the developed care plan and associated actions prior to meeting conclusion | Provide a recommended timeline for program implementation (e.g. meeting invitations, team huddles, follow-up) | |
Provide a hard copy of the care plan for the patient and/or care partner to take home | Add guidance for conducting follow-up with patients and maintaining care team communication |
Data garnered from patient and care provider concept elicitation interviews.