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. 2020 Feb 21;35(8):1426–1435. doi: 10.1093/ndt/gfaa018

Table 3.

Patient and care team suggestions for care planning program content updates a

Element Patients and care partner suggestions Care team member suggestions
Length Keep as short as possible Keep as short as possible but not at the expense of contextualizing examples
Medium Written and video Written
Terminology Avoid medical terminology without description(s), even for terms used routinely in health care (e.g. care plan, confidentiality) Emphasize dialysis-specific examples and include descriptions and definitions for key terms (e.g. person-centered, shared decision-making)
Replace term ‘life goal’ with phrase ‘needs and priorities’ Replace term ‘life goal’ with ‘personal goal’ and/or ‘needs and priorities’
Content Provide example meeting topics, potential life priorities and more preparation questions Provide a succinct program introduction, overview and rationale
Use empowering language about working together, creating/maintaining open communication and actively participating in the care plan meeting Add a graphic that shows the differences in the problem- and priority-based approaches to care plans
Explain the potential benefit of discussing both medical and personal priorities and concerns during care plan meetings Provide references for evidence-based support of program implementation
Explain why family and/or care partners might attend care plan meetings Provide a step-by-step care plan meeting conversation guide to assist in eliciting patient priorities
Emphasize confidentiality of discussions occurring at care plan meetings Provide example patient priorities, barriers and care plan actions
Provide note-taking space Give examples of potential implementation challenges and possible solutions
Logistics Provide advanced notice of upcoming care plan meetings with options for location, timing and attendees Use private settings for the care plan meeting and include family and/or care partners if desired by the patient
Perform a final review of the developed care plan and associated actions prior to meeting conclusion Provide a recommended timeline for program implementation (e.g. meeting invitations, team huddles, follow-up)
Provide a hard copy of the care plan for the patient and/or care partner to take home Add guidance for conducting follow-up with patients and maintaining care team communication
a

Data garnered from patient and care provider concept elicitation interviews.