Table 4.
Element | Key findings | Responsive material updates |
---|---|---|
Patient materials | ||
Content | Clear and succinct introduction needed | Created cover page with brief overview |
Phrase ‘working for you’ unclear | Replaced with ‘meeting your needs’ | |
Phrase ‘Don’t be afraid to speak up’ felt patronizing to some participants | Replaced with ‘Don’t be shy! Speak up! Your voice matters’. | |
Term ‘person-centered’ difficult to understand | Replaced with ‘what matters most to you’ | |
Term ‘individualized’ unclear | Updated to ‘unique to your needs and priorities’ | |
Term ‘care plan’ rarely recognized without description or additional context | Added content on meeting frequency, attendees and discussion topic examples to orient patient to care plan meeting | |
Formatting | Text-heavy, increase white space | Converted paragraph text into bullet points |
Headers not easily noticeable | Bolded, colored and increased header font size | |
Sequence of items unclear | Added numbering when applicable | |
General comments | Physically difficult to distinguish from other documents received in clinic | Altered material dimensions and paper weight and added more color to clearly differentiate |
Receiving a copy of the care plan may help patients remember the meeting discussion | Added, ‘Your care team will give you a copy of your care plan to take home’. | |
Consistent communication is helpful, but patients often have different relationships with different care team members | Added, ‘You can always talk to a care team member. You don’t have to wait for another meeting’. | |
Preparation questions helpful and relevant, but not comprehensive | Added questions about overall dialysis experience/ concerns and desired life changes | |
Care team materials | ||
Content | Lacks instructions to orient reader | Created cover page with brief overview |
Seems bulky, difficult to skim easily | Added table of contents for easier navigation | |
Redundant between sections | Collapsed information | |
Example priorities, barriers, challenges and solutions need to be more realistic, less ideal | Used specific examples as recommended in various interviews | |
Example solutions appear to be concrete answers, rather than suggested approaches | Edited to acknowledge variability in possible actions for individual patients and circumstances | |
Formatting | Text-heavy, but should retain information | Changed paragraph text into bullet format |
Conversation guide appears to be suggestions for engaging in discussion, rather than step-by-step instructions | Numbered steps to indicate a clear process by which to elicit patient preferences | |
General comments | Timeline seems unclear; care teams would likely need to alter from clinic to clinic | Updated language to reflect a more flexible timeline to meet individual clinic needs |
Lacking in disease-specific examples; contains too much emphasis on personal priorities | Added more examples of health-related patient priorities and possible actions | |
Process requires effort, but would create meaningful patient interactions and more individualized care plans | Incorporated language around significance of helping patients achieve both their personal and medical goals | |
Resources helpful for meeting preparation, patient engagement and team organization | Merged resources and process description into single care team packet |
Data garnered from patient and care provider cognitive debriefing interviews.