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. 2020 Feb 21;35(8):1426–1435. doi: 10.1093/ndt/gfaa018

Table 4.

Cognitive interview key findings and responsive material updates a

Element Key findings Responsive material updates
Patient materials
Content Clear and succinct introduction needed Created cover page with brief overview
Phrase ‘working for you’ unclear Replaced with ‘meeting your needs’
Phrase ‘Don’t be afraid to speak up’ felt patronizing to some participants Replaced with ‘Don’t be shy! Speak up! Your voice matters’.
Term ‘person-centered’ difficult to understand Replaced with ‘what matters most to you’
Term ‘individualized’ unclear Updated to ‘unique to your needs and priorities’
Term ‘care plan’ rarely recognized without description or additional context Added content on meeting frequency, attendees and discussion topic examples to orient patient to care plan meeting
Formatting Text-heavy, increase white space Converted paragraph text into bullet points
Headers not easily noticeable Bolded, colored and increased header font size
Sequence of items unclear Added numbering when applicable
General comments Physically difficult to distinguish from other documents received in clinic Altered material dimensions and paper weight and added more color to clearly differentiate
Receiving a copy of the care plan may help patients remember the meeting discussion Added, ‘Your care team will give you a copy of your care plan to take home’.
Consistent communication is helpful, but patients often have different relationships with different care team members Added, ‘You can always talk to a care team member. You don’t have to wait for another meeting’.
Preparation questions helpful and relevant, but not comprehensive Added questions about overall dialysis experience/ concerns and desired life changes
Care team materials
Content Lacks instructions to orient reader Created cover page with brief overview
Seems bulky, difficult to skim easily Added table of contents for easier navigation
Redundant between sections Collapsed information
Example priorities, barriers, challenges and solutions need to be more realistic, less ideal Used specific examples as recommended in various interviews
Example solutions appear to be concrete answers, rather than suggested approaches Edited to acknowledge variability in possible actions for individual patients and circumstances
Formatting Text-heavy, but should retain information Changed paragraph text into bullet format
Conversation guide appears to be suggestions for engaging in discussion, rather than step-by-step instructions Numbered steps to indicate a clear process by which to elicit patient preferences
General comments Timeline seems unclear; care teams would likely need to alter from clinic to clinic Updated language to reflect a more flexible timeline to meet individual clinic needs
Lacking in disease-specific examples; contains too much emphasis on personal priorities Added more examples of health-related patient priorities and possible actions
Process requires effort, but would create meaningful patient interactions and more individualized care plans Incorporated language around significance of helping patients achieve both their personal and medical goals
Resources helpful for meeting preparation, patient engagement and team organization Merged resources and process description into single care team packet
a

Data garnered from patient and care provider cognitive debriefing interviews.