TABLE I.
Characteristics of FARE Registry respondents
| Parent/guardian respondent |
Self-respondent |
Total |
|||||||
|---|---|---|---|---|---|---|---|---|---|
| N | % | 95% CI | N | % | 95% CI | N | % | 95% CI | |
| All respondents | 2679 | 100.0 | (100.0-100.0) | 1396 | 100.0 | (100.0-100.0) | 4075 | 100.0 | (100.0-100.0) |
| Age in years at registry enrollment | |||||||||
| <5 | 606 | 22.6 | (21.1-24.2) | NA | NA | NA | 606 | 14.9 | (13.8-16.0) |
| 5-12 | 1242 | 46.4 | (44.5-48.3) | NA | NA | NA | 1242 | 30.5 | (29.1-31.9) |
| 13-17 | 662 | 24.7 | (23.1-26.4) | NA | NA | NA | 662 | 16.2 | (15.1-17.4) |
| 18-25 | 169 | 6.3 | (5.4-7.3) | 279 | 20.0 | (18.0-22.2) | 448 | 11.0 | (10.1-12.0) |
| 26-66 | NA | NA | NA | 1024 | 73.4 | (71.0-75.6) | 1024 | 25.1 | (23.8-26.5) |
| >66 | NA | NA | NA | 93 | 6.7 | (5.5-8.1) | 93 | 2.3 | (1.9-2.8) |
| Gender | |||||||||
| Female | 1015 | 37.9 | (36.1-39.7) | 1208 | 86.5 | (84.6-88.2) | 2223 | 54.6 | (53.0-56.1) |
| Race | |||||||||
| White | 2244 | 83.8 | (82.3-85.1) | 1207 | 86.5 | (84.6-88.2) | 3451 | 84.7 | (83.5-85.8) |
| Black/African American | 37 | 1.4 | (1.0-1.9) | 44 | 3.2 | (2.4-4.2) | 81 | 2.0 | (1.6-2.5) |
| Asian | 92 | 3.4 | (2.8-4.2) | 31 | 2.2 | (1.6-3.1) | 123 | 3.0 | (2.5-3.6) |
| Native American/Alaskan Native | 4 | 0.1 | (0.1-0.4) | 11 | 0.8 | (0.4-1.4) | 15 | 0.4 | (0.2-0.6) |
| Pacific Islander | 4 | 0.1 | (0.1-0.4) | 0 | 0.0 | (0.0-0.0) | 4 | 0.1 | (0.0-0.3) |
| Multiracial | 233 | 8.7 | (7.7-9.8) | 57 | 4.1 | (3.2-5.3) | 290 | 7.1 | (6.4-7.9) |
| Unspecified/missing | 65 | 2.4 | (1.9-3.1) | 46 | 3.3 | (2.5-4.4) | 111 | 2.7 | (2.3-3.3) |
| Ethnicity | |||||||||
| Hispanic/Latinx | 199 | 7.4 | (6.5-8.5) | 75 | 5.4 | (4.3-6.7) | 274 | 6.7 | (6.0-7.5) |
| Non-Hispanic/Latinx | 1690 | 63.1 | (61.2-64.9) | 894 | 64.0 | (61.5-66.5) | 2584 | 63.4 | (61.9-64.9) |
| Unspecified/missing | 790 | 29.5 | (27.8-31.2) | 427 | 30.6 | (28.2-33.1) | 1217 | 29.9 | (28.5-31.3) |
| Region | |||||||||
| West | 459 | 17.1 | (15.8-18.6) | 271 | 19.4 | (17.4-21.6) | 730 | 17.9 | (16.8-19.1) |
| Midwest | 675 | 25.2 | (23.6-26.9) | 294 | 21.1 | (19.0-23.3) | 969 | 23.8 | (22.5-25.1) |
| South | 759 | 28.3 | (26.7-30.1) | 418 | 29.9 | (27.6-32.4) | 1177 | 28.9 | (27.5-30.3) |
| Northeast | 688 | 25.7 | (24.1-27.4) | 357 | 25.6 | (23.4-27.9) | 1045 | 25.6 | (24.3-27.0) |
| Unspecified/missing | 98 | 3.7 | (3.0-4.4) | 56 | 4.0 | (3.1-5.2) | 154 | 3.8 | (3.2-4.4) |
| Type of “Top 9” food allergy | |||||||||
| Peanut | 2147 | 80.1 | (78.6-81.6) | 656 | 47.0 | (44.4-49.6) | 2803 | 68.8 | (67.3-70.2) |
| Treenut | 1874 | 70.0 | (68.2-71.7) | 686 | 49.1 | (46.5-51.8) | 2560 | 62.8 | (61.3-64.3) |
| Egg | 1421 | 53.0 | (51.1-54.9) | 316 | 22.6 | (20.5-24.9) | 1737 | 42.6 | (41.1-44.2) |
| Milk | 1041 | 38.9 | (37.0-40.7) | 401 | 28.7 | (26.4-31.2) | 1442 | 35.4 | (33.9-36.9) |
| Shellfish | 384 | 14.3 | (13.1-15.7) | 424 | 30.4 | (28.0-32.8) | 808 | 19.8 | (18.6-21.1) |
| Fin fish | 217 | 8.1 | (7.1-9.2) | 195 | 14.0 | (12.2-15.9) | 412 | 10.1 | (9.2-11.1) |
| Wheat | 378 | 14.1 | (12.8-15.5) | 294 | 21.1 | (19.0-23.3) | 672 | 16.5 | (15.4-17.7) |
| Soy | 452 | 16.9 | (15.5-18.3) | 318 | 22.8 | (20.7-25.1) | 770 | 18.9 | (17.7-20.1) |
| Sesame | 502 | 18.7 | (17.3-20.3) | 177 | 12.7 | (11.0-14.5) | 679 | 16.7 | (15.5-17.8) |
| No. of food allergies | |||||||||
| Single food allergy | 470 | 17.5 | (16.1-19.0) | 399 | 28.6 | (26.3-31.0) | 869 | 21.3 | (20.1-22.6) |
| Multiple food allergies | 2209 | 82.5 | (81.0-83.9) | 997 | 71.4 | (69.0-73.7) | 3206 | 78.7 | (77.4-79.9) |
| Average no. of reactions | |||||||||
| Less than once per year | 1232 | 46.0 | (44.1-47.9) | 420 | 30.1 | (27.7-32.5) | 1652 | 40.5 | (39.0-42.1) |
| Once per year | 384 | 14.3 | (13.1-15.7) | 139 | 10.0 | (8.5-11.6) | 523 | 12.8 | (11.8-13.9) |
| More than once per year | 807 | 30.1 | (28.4-31.9) | 731 | 52.4 | (49.7-55.0) | 1538 | 37.7 | (36.3-39.2) |
| Never/unspecified/missing | 256 | 9.6 | (8.5-10.7) | 106 | 7.6 | (6.3-9.1) | 362 | 8.9 | (8.0-9.8) |
| Comorbidities | |||||||||
| Allergic rhinitis | 950 | 35.5 | (33.7-37.3) | 771 | 55.2 | (52.6-57.8) | 1721 | 42.2 | (40.7-43.8) |
| Asthma | 1199 | 44.8 | (42.9-46.6) | 786 | 56.3 | (53.7-58.9) | 1985 | 48.7 | (47.2-50.2) |
| Atopic dermatitis | 1579 | 58.9 | (57.1-60.8) | 459 | 32.9 | (30.5-35.4) | 2038 | 50.0 | (48.5-51.5) |
| Bee allergy | 25 | 0.9 | (0.6-1.4) | 166 | 11.9 | (10.3-13.7) | 191 | 4.7 | (4.1-5.4) |
| Contact dermatitis | 305 | 11.4 | (10.2-12.6) | 273 | 19.6 | (17.6-21.7) | 578 | 14.2 | (13.1-15.3) |
| Drug allergy | 275 | 10.3 | (9.2-11.5) | 576 | 41.3 | (38.7-43.9) | 851 | 20.9 | (19.7-22.2) |
| EOE | 111 | 4.1 | (3.5-5.0) | 76 | 5.4 | (4.4-6.8) | 187 | 4.6 | (4.0-5.3) |
| FPIES | 51 | 1.9 | (1.4-2.5) | 15 | 1.1 | (0.6-1.8) | 66 | 1.6 | (1.3-2.1) |
| OAS/PFAS | 195 | 7.3 | (6.4-8.3) | 253 | 18.1 | (16.2-20.2) | 448 | 11.0 | (10.1-12.0) |
CI, Confidence interval; EOE, eosinophilic esophagitis; FA, food allergy; FARE, Food Allergy Research and Education; FPIES, Food Protein-Induced Enterocolitis Syndrome; OAS, Oral Allergy Syndrome; PFAS, Pollen Food Allergy Syndrome.
Basic demographic information and relevant FA information was provided by parent/guardian respondents as well as self-respondents. Respondents were also asked to answer the average number of reactions they experience per year and list any diagnosed comorbidities.