TABLE 1.

Medical Complexity Domains and Pertinent NSCH Items

Domain	Pertinent Survey Items	Descriptive Statistics	Domain Threshold
Health care use	≥2 ED visits; ≥2 preventive check-ups; child used more medical care than most children because of a medical condition lasting ≥12 mo	Mean: 0.4;median: 0;75th percentile: 1; 95th percentile: 2; 99th percentile: 2	≥2 (6.8% of the sample)
Health service needs	Prescription medications; physical, occupational, speech, and/or developmental therapy; specialist care; vision care requiring an eye specialist; home health care; care coordination; mental health care; goes to ED or hospital when sick	Mean: 1.3; median: 1; 75th percentile: 2; 95th percentile: 4; 99th percentile: 5	≥4 (5.9% of the sample)
Functional limitations	Health conditions affect ability to do things; limited ability to do things most children can do because of a health condition lasting ≥12 mo	Mean: 0.1; median: 0; 75th percentile: 0; 95th percentile: 1; 99th percentile: 2	≥1 (6.2% of sample)
Complex chronic conditions (positive if either symptoms or conditions subdomain criteria are met)			13.1% of sample met criteria
Symptoms (difficulty with the following)	Breathing, swallowing, digestion or intestines, chronic physical pain, using hands, coordination or moving around, gum bleeding, deafness or problems hearing, blindness or problems seeing	Mean: 0.3;median: 0;75th percentile: 0;95th percentile: 2;99th percentile: 3	≥2
Conditions (current and/or severe)	Allergies, arthritis, asthma, blood disorder, brain injury, cerebral palsy, cystic fibrosis, diabetes, Down syndrome, epilepsy, genetic condition, heart condition, headaches, Tourette’s syndrome, anxiety, depression, behavior problems, developmental delay, intellectual or leaning disability, speech disorder, autism spectrum disorder, substance abuse, other	Conditions currently present: mean: 0.8; median: 0; 75th percentile: 1; 95th percentile: 4; 99th percentile: 7.Severe conditions: mean: 0.1;median: 0; 75th percentile: 1; 95th percentile: 1; 99th percentile: 2	≥4 conditions currently present or ≥1 condition described as severe

ED, emergency department.