Table 1.
Demographics of the research participants, genetic researchers, and Institutional Review Board professionals
| a Demographics of the research participant group | |||||
| Total (n = 450) | Cases (n = 228) | Controls (n = 155) | Relatives (n = 67) | p value | |
| Age, years | 63.6±11.8 | 64.3±11.4 | 64.0±11.5 | 60.5±13.6 | 0.079 |
| Women | 292 (64.9) | 145 (63.6) | 110 (71.0) | 37 (55.2) | 0.066 |
| Race | |||||
| Asian/Pacific Islander | 7 (15.6) | 4 (1.8) | 2 (1.3) | 1 (1.5) | 0.9149 |
| Black | 4 (0.9) | 2 (0.9) | 2 (1.3) | 0 | |
| Multi-racial/other | 16 (3.6) | 8 (3.5) | 4 (2.6) | 4 (6.0) | |
| White | 423 (94.7) | 214 (93.9) | 147 (94.8) | 62 (92.5) | |
| Education | |||||
| High School or less | 40 (8.9) | 19 (8.3) | 13 (8.4) | 8 (11.9) | 0.5922 |
| Some college | 107 (23.8) | 57 (25.0) | 37 (23.9) | 13 (19.4) | |
| Bachelor’s degree | 276 (61.3) | 126 (55.3) | 105 (67.7) | 45 (67.2) | |
| Unknown | 27 (6.0) | 26 (11.4) | 0 | 1 (1.5) | |
| b Demographics of the genetic researcher (ASHG) and Institutional Review Board (PRIM&R) groups | |||||
| ASHG (n = 351) | PRIM&R (n = 208) p value | ||||
| Women | 182 (51.9) | 148 (76.0) | <0.0001 | ||
| Opposite service | 94 (26.8) | 91 (43.8) | <0.0001 | ||
| Years working in genetic research/IRB | |||||
| <5 years | 61 (17.4) | 80 (38.5) | <0.0001 | ||
| >5 years | 289 (82.3) | 118 (56.7) | |||
Values are presented as mean ± SD or n (%). Opposite service is defined as Institutional Review Board professionals previously working as genetic researchers and genetic researchers previously working as Institutional Review Board professionals.