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. 2020 Dec 22;13(4):583–600. doi: 10.3233/PRM-200734

Table 2, continued

Age group Guidelines Evidence
18+ years 12. Assess individual and system barriers to self-management (e.g., difficulties with self-advocacy, assertiveness, and insufficient adult services). Evidence [20, 21, 37, 75]
13. Refer to vocational rehabilitation, independent living centers, or other community agencies as appropriate. Clinical consensus
14. Provide information about accessible housing, financing, and appropriate outside agencies. Clinical consensus
15. Encourage planning and use of support services (e.g., in a college setting, services for students with disabilities) for self-management and independence in new environments. Clinical consensus
16. Encourage the use of wellness programs. Evidence [39]
17. Evaluate and support patients as their parents and caregivers age and assist individuals with spina bifida with planning for changes in self-management and independence when their parents and caregivers will not be available. Clinical consensus