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. 2020 Aug 25;21(1):1–7. doi: 10.1038/s41397-020-00182-9

Table 1.

Willingness of patients to share pharmacogenomics (PGx) test results with family members and their health care providers (HCPs).

Are patients willing to manage PGx results? (Yes/No) Number of participants Findings Rationale Authors [Ref.]
Yes 1464 909 (62%) planned to share genomic results with HCPs To improve health van der Wouden et al. [12]
Yes 17 11 (65%) reported that they will share PGx results with physicians, 8 (47%) shared results with family To select the best treatment option Haga et al. [6]
Yes 588 406 (69%) planned to share PGx results with HCPs, family, children, siblings, friends, parents, and pharmacists Results would be important for health care decisions and medication selection or family’s health Olson et al. [11]
Yes 478 430 (90%) indicated that they were extremely comfortable sharing and managing PGx results Wanted doctors to manage care and avoid duplicate testing Haga et al. [14]
Yes 54 34 (63%) reported discussing PGx results with provider and 43 (80%) discussed results with family To help in health care decision making Lemke et al. [16]
Yes 77 56 (72.7%) reported sharing results from BRCA1/2 or Lynch syndrome testing with HCPs and 58 (75.3%) with family members To inform family about risks, receive recommendations from HCPs Taber et al. [15]
Yes 62 All participants wanted to share results with family and 37 (60%) with providers, while 20 (31%) wished to withhold PGx information from providers Patients (n = 20, 31%) who did not want to share with providers claimed that providers were too busy, not interested, or incompetent Madadi et al. [22]
Yes 319 249 (78%) viewed and navigated electronic health records but 70 (22%) patients did not want to see results Patients (n = 70, 22%) who did not want to see PGx results expressed concerns for confidentiality, computer security, lack of interest, fear of results, etc. Pyper et al. [21]