Yes |
1464 |
909 (62%) planned to share genomic results with HCPs |
To improve health |
van der Wouden et al. [12] |
Yes |
17 |
11 (65%) reported that they will share PGx results with physicians, 8 (47%) shared results with family |
To select the best treatment option |
Haga et al. [6] |
Yes |
588 |
406 (69%) planned to share PGx results with HCPs, family, children, siblings, friends, parents, and pharmacists |
Results would be important for health care decisions and medication selection or family’s health |
Olson et al. [11] |
Yes |
478 |
430 (90%) indicated that they were extremely comfortable sharing and managing PGx results |
Wanted doctors to manage care and avoid duplicate testing |
Haga et al. [14] |
Yes |
54 |
34 (63%) reported discussing PGx results with provider and 43 (80%) discussed results with family |
To help in health care decision making |
Lemke et al. [16] |
Yes |
77 |
56 (72.7%) reported sharing results from BRCA1/2 or Lynch syndrome testing with HCPs and 58 (75.3%) with family members |
To inform family about risks, receive recommendations from HCPs |
Taber et al. [15] |
Yes |
62 |
All participants wanted to share results with family and 37 (60%) with providers, while 20 (31%) wished to withhold PGx information from providers |
Patients (n = 20, 31%) who did not want to share with providers claimed that providers were too busy, not interested, or incompetent |
Madadi et al. [22] |
Yes |
319 |
249 (78%) viewed and navigated electronic health records but 70 (22%) patients did not want to see results |
Patients (n = 70, 22%) who did not want to see PGx results expressed concerns for confidentiality, computer security, lack of interest, fear of results, etc. |
Pyper et al. [21] |