Table 2.

Items for inclusion in decision aid from the qualitative interview findings

1. Why people with cognitive impairment are included in research

2. That the proxy’s decision or advice should be based on what the person’s wishes and feelings about taking part would be if they had capacity to decide

3. That the proxy should consider if there is any reason why the person would not have wanted to participate

4. The relevant advantages and disadvantages and how they relate to the person themselves

5. That the person should be involved in the decision as much as possible

6. That the proxy can take time to decide and they can always change their mind