Table 3. Types of rumors, concerns, expectations and mistrust identified in Bangladesh, Mali and Mozambique 2017–2018.
Before MITS kick-off | After MITS kick-off | |||||
---|---|---|---|---|---|---|
Countries | Bangladesh | Mali | Mozambique | Bangladesh | Mali | Mozambique |
Rumors | ||||||
Full autopsies carried out | * | * | * | |||
Insufficient information about MITS had been provided during the consent process | * | * | ||||
Major organs have been taken | * | * | * | ** | * | |
Collection of large amounts of blood from the sick children caused death | * | |||||
MITS is done on the living child | ** | * | ||||
Signing a consent form for demographic surveillance means one is bound to handover a body of a child if it dies | * | |||||
Insufficient information about MITS had been provided during the consent process | * | * | ||||
Children died due to malpractice of the health practitioners | * | ** | ||||
Concern | ||||||
People who consented to MITS could be stigmatized/scolded | * | * | ||||
Villagers were shocked seeing the seepage of fluid from the puncture sites | ** | |||||
Islam does not permit hurting a dead body/ disrespect of the body | * | * | ||||
Why MITS is focused on only the deceased? | * | * | ||||
Who will bear the cost of body transportation from the hospital to home after MITS being performed or vice versa? | * | * | * | * | ||
Why MITS is focused on only children? | * | * | * | * | ||
Sharing MITS result may cause stigmatization and suffering of the study participants | * | |||||
Transportation of the body would bring suffering to the deceased | * | |||||
Mistrust | ||||||
CHAMPS might have hidden motives: body part business | * | * | * | * | ** | |
Community corruption and poor care of health professional may lead to mistrust | * | * | ||||
Free diagnostic testing was provided to the patients so that the MITS team could collect specimens if the patient died | * |
* Accounts of rumor, concern and cues of mistrust identified in the program sites