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. 2020 Oct 18;41(1):99–108. doi: 10.1007/s10875-020-00886-4

Table 3.

Different information sources in the SCID pilot study and the evaluation scores of the received information by parents (N = 391)

Did you receive: Yes, N (%) No, N (%) I do not remember/I do not know, N (%) Evaluation score 1–10 (SD, N) P value*
Total Participated in SCID pilot study Declined participation in the SCID pilot study
Oral information via the midwife/gynecologist 107 (28.1) 195 (51.2) 79 (20.7) 7.5 (SD 1.3, N = 128) 7.4 (SD 1.3; N = 118) 7.1 (SD 1.2; N = 6) P = 0.537
Oral information via the screener 181 (47.5) 114 (29.9) 86 (22.6) 7.1 (SD 1.5, N = 196) 7.2 (SD 1.4; N = 175) 5.7 (SD 1.4; N = 12) P = 0.001
Information leaflet 7.6 (SD 1.3, N = 112) 7.6 (SD 1.3; N = 110) 6.7 (SD 0.76; N = 7) P = 0.019
 From midwife/gynecologist 64 (18.2) 212 (60.4) 75 (21.4)
 From screener 59 (17.7) 202 (60.5) 73 (21.9)
 At city hall 22 (6.8) 230 (71.4) 70 (21.7)
Visited the study website www.sonnetstudie.nl 13 (3.4) 368 (96.4) 1 (0.3) 7.8 (SD 1.6, N = 19)

Missing values were excluded from the percentages. Evaluation scores were not individually calculated for parents who could not remember whether they participated in the SCID pilot study (N = 33)

*Mann-Whitney U test