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. 2021 Feb 1;7:9. doi: 10.1186/s40900-021-00253-6

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© The Author(s) 2021

Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

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Fig. 4 — Questionnaire development process. Only the items of the questionnaire where contents were changed are shown in this figure. The first draft was made by the researchers. The second draft reflects the patient partner’s opinions on the first draft. The third draft was developed through the first online meeting, which was attended by both the patient partner and researchers. An independent review by medical researchers and subsequent online meetings resulted in the final draft. The items in the black box are the fixed questions. *This item includes medical institutions and home. **This item includes whether the patient visited a medical institution by him/herself, with someone’s help or by ambulance