Table 6.

Various communication strategies

	Dates	Main purposes
RUDY JAPAN Facebook (public) [38]	Since Dec. 2017	To disseminate information daily and externally. Post images and videos, share links.
RUDY JAPAN info (public) [39]	Since Dec. 2017	To provide research information and update activities mainly for prospective and current participants, in addition to guide how to register and use RUDY JAPAN.
Newsletter (public)	Oct. 2018, Mar. 2019	To periodically report progress in the development of the platform, as well as research results and messages from researchers and patients to participants.
Patient Network Forum (semi-private)	Jan. 2019 Oct. 2019	To facilitate communication and networking among patients and between patients and doctors. The main topics include daily lives of patients and questions about clinical care.