Table 2.

Research Associate Survey Responses

What burdens do you face with respect to collection PRO/QOL data over time? Check all that apply.	(n=64)
Patients miss appointments	39 (60.9%)
Patients think the forms are too burdensome	22 (34.4%)
Patients think there are too many PRO forms on a study	25 (39.1%)
Patients think the collection times of PRO forms are too frequent	17 (26.6%)
Staff member doesn’t catch the patient at his/her appointment	36 (56.6%)
Other	7 (10.9%)
Do you or other RAs at your site receive automatic email reminders and past due notifications for PRO/neurocognitive test forms?	(n=57)
Yes	23 (40.4%)
No	34 (59.6%)
Do you find these emails helpful?	(n=23)
Yes	19 (82.6%)
No	4 (17.4%)
What could be improved with these emails? Check all that apply.	(n=23)
Receive a single email rather than 1 per form	12 (52.2%)
Receive them further in advance	18 (78.3%)
Other	0 (0.0%)
Do you think receiving automatic email reminders and past notifications would be helpful?	(n=33)
Yes	30 (90.9%)
No	3 (9.1%)

PRO=Patient reported outcomes; QOL = Quality of life; RA=Research associate