Table 3.

Problems: Definitions and Frequencies (N=101)

Theme	Definition	Participants who Reported n (%)
Medical supply or technological equipment barrier	Inclusive of transportation of child and medical technology, heavy and burdensome medical equipment, faulty medical equipment, unfamiliarity with medical equipment, noisy medical equipment, missing or poorly fitting medical equipment, reordering medical equipment or supplies	40 (39.60)
Personal balance	Inclusive of juggling the supervision of well siblings, personal lives of well siblings, childcare balance, relationship balance, work balance, social life balance	35 (34.65)
Disruption of family routine	Barriers to incorporation of the technology-dependent child’s care into family routines, family adaptation issues, family member adjustment issues, learning to take turns providing medical treatment/care	26 (25.74)
Healthcare service scheduling	Issues related to scheduling appointments, seeing consistent healthcare provider, homecare scheduling	24 (23.76)
Safety	Issues related to keeping the technology-dependent child safe while using technological equipment, hearing ventilator alarms, proper connection and function of technological equipment, prompt delivery of medical care at appropriate times	14 (13.86)
Healthcare financing	Inclusive of health insurance barriers, affordability of transportation (wheelchair accessible van) that accommodates medical equipment, financial issues related to cost of technology-dependent child’s medical care	9 (8.91)
No identified problem	Mother unable to identify problems with day-to-day management of technology-dependent child	1 (.99)