Table 4. Phase 1 –summary of panel member responses.

Staying Strong Domain	Categories	Tips for Success
Exercising Your Body	Walking Practice	“You have to be able to do exercise in a place away from an audience, with families or with other MJD people.” (4)
	House Working or Job Working
	Getting Strong Muscles
	Doing Sport	“…It’s better to do exercise with people we trust and that make us happy.” (2)
Going Country	Hunting Ideas	“Sitting too long gives you cramps and makes you wobbly. You have to try keep your body moving.” (7)
	Fishing Ideas
	Walking–Bush or Beach
Searching for Good Medicine	Looking for Medicine Yourself	“It’s about eating well as well as getting it [bush medicine]… it’s good exercise but it will make you want to go and find more too…. Because they are so good to eat…good for you inside and outside.” (11)
	Working with Family to Look for Medicines
	Bringing Medicine Home to Help Other Families
	Cooking Medicine Yourself or Drawing on Others
	Getting Help From the Clinic with Medicines	“Have lots of good food… the best food comes from the land and saltwater…don’t eat too much greasy food at the shop [local take away store].” (5)
Keeping Yourself Happy	Doing Fun Things	“…Find things that make you feel good and take your mind off the sickness, for anyone with MJD. (1)
	Getting Out of the House
	Being with Families
	Staying Happy and Healthy
	Teaching the Kids About MJD
Families Helping Each Other	Helping Your Family With and Without MJD	“Help other people with MJD to move their body, go Country, do things for them, support them. It will keep you moving your body…” (4)”
	Helping Yourself
	How Families Can Help Their Loved Ones With MJD
Something Important to Do	Finding Something Important to Do	“…Important things keep you busy…take your mind off that sickness. Find ways to make things easy so you can do them yourself. Find those things you can do by yourself at home.” (1)
	Finding a Job to Do
	Working Around the House
	Important Ways to Support Your Family
	Finding Help to Do Things That Are Important