Table 1.
Demographic characteristics.
| Demographic Characteristics | n (%) |
|---|---|
| Total eligible patients | 566 (100) |
| Total participation rate | 201 (35.5) |
| Mean age: 44.2 years (range 23–74) | 201 (100) |
| Mean age at time of diagnosis 33.7 years (range 20–68) | 201 (100) |
| Mean follow up time to questionnaire 10.6 years (range 2–21) | 201 (100) |
| Histology | |
| Seminoma | 101 (50.2) |
| Non-seminoma | 96 (47.8) |
| Neuro-endocrine | 1 (0.5) |
| Leydig cell tumour (malign) | 3 (1.5) |
| Histology contralateral tumour | 7 (3.4) |
| Seminoma | 2 (28.6) |
| Non-seminoma | 4 (57.2) |
| CIS | 1 (14.3) |
| Tumor stadium | |
| Stage I | 103 (51.2) |
| Stage II | 29 (14.4) |
| Stage III | 2 (1) |
| Stage IV | 7 (3.5) |
| Unknown | 60 (29.9) |
| Primary treatment | |
| Primary orchiectomy a | 200 (99.5) |
| Chemotherapy | 1 (0.5) |
| Orchiectomy for contralateral tumour | 7 (3.5) |
| Secondary | |
| Surveillance | 48 (23.9) |
| Additional therapy | |
| Chemotherapy | 96 (47.8) |
| +RPLND | 21 (10.4) |
| +RT | 3 (1.5) |
| +RPLND & RT | 1 (0.5) |
| +Metastasectomy | 3 (1.5) |
| +RT + Metastasectomy | 1 (0.5) |
| Metastasectomy a | 1 (0.5) |
| Radiotherapy | 27 (13.4) |
| Marital status | |
| Married/registered partnership | 116 (57.7) |
| Relationship, living together | 47 (23.4) |
| Relationship, living apart | 13 (6.5) |
| Single | 18 (9) |
| Divorced | 4 (2) |
| Widow | 1 (0.5) |
| Unknown | 2 (1) |
| Educational level | |
| Secondary school | 36 (17.9) |
| Secondary vocational education | 50 (24.9) |
| Higher professional education/University | 115 (57.2) |
| Country of birth | |
| Netherlands | 178 (88.6) |
| Other (USA 1, Colombia 2, Germany 3, France 1, Indonesia 2, Iran 1, unknown 13) | 23 (11.4) |
(a) a single patient did not primarily receive an orchiectomy as there was a burned out tumour; presenting with metastasis.