Table 1.
Data source | Data source description | Examples of outcome variables |
ELIa | The Ministry of Education information system for Early Childhood Education (ECE) collects information on participating children's enrollment and attendance. | Infant registration with ECE/Te Kōhanga Reo at 2 years of ageb |
MATc | The MAT provides statistical, demographic, and clinical information about selected publicly funded maternity services up to 9 months before and 3 months after a birth. It also contains inpatient and day-patient health event data on pregnancy, birth, and the postnatal period for mother and baby, sourced from the National Minimum Dataset (administered by the MOHd). | Maternal ethnicity; smoking status at time of booking with a maternity care provider and at 2 weeks postdeliveryb; hospitalization episodesb; antenatal screeningb; plurality; parity; mode of deliveryb; Apgar scoresb; birthweight; gestational age at deliveryb; infant hospitalization in first year of lifeb; breastfeeding status at infant dischargeb, 2 weeksb, and 6 weeks |
MOH | The MOH receives data from different parts of the health sector through the utilization of health services or mandatory reporting national collections and also from national population health surveys. | Infant registration to oral health services at 2 years of ageb |
MORTe | The MORT classifies the underlying cause of death for all deaths registered in New Zealand and all registerable stillbirths using the World Health Organization Rules and Guidelines for Mortality Coding. | Infant mortalityb, ethnicity, date of death, gestational age at death, birthweight, diagnostic codes on cause of death, sudden and unexpected death indicator |
NIRf | The NIR is a computerized information system that has been developed to hold immunization details of New Zealand children (administered by the MOH). | Infant vaccination at 6 weeksg, 3 monthsg, 5 monthsg, and 15 monthsb |
NHIh | The NHI is a system used by public hospitals and other health and disability support services to assign an alphanumeric identifier (the NHI number) to people who use their services. | NHI number, area deprivation, ethnicity (maternal and infant) |
NMDSi | The NMDS is a national collection of public and private hospital discharge information, including coded clinical data for inpatients and day patients (hospital events). | Ethnicity; diagnostic codes (ICD-10j)b; maternal, antenatal, or postnatal hospital admissions (public)b; discharge dates and length of stay; infant hospital admissions (public)b; discharge dates and length of stay |
PHOk | The PHO provides a national enrollment collection that holds patient enrollment data. | Infant engagement with general practitioner <8 weeks postdelivery or after infant discharge from hospitalb |
WCTOl | The WCTO program is a series of health assessments and support services for children and their families from birth to 5 years and is a gateway for parents to access primary and specialist health care, education, and social services. WCTO providers submit service coverage and data to the MOH. | Attendance at scheduled WCTO infant appointments at 8-10 weeksb, 3-4 monthsb, 5-7 monthsb, 9-12 monthsb, and 15-18 monthsb; breastfeeding status at 3 months and 6 monthsb |
aELI: Early Learning Information System – Ministry of Education.
bSecondary outcome.
cMAT: National Maternity Collection.
dMOH: Ministry of Health.
eMORT: Mortality Collection.
fNIR: National Immunisation Register.
gPrimary outcome.
hNHI: National Health Index.
iNMDS: National Minimum Dataset.
jICD-10: International Classification of Diseases, Tenth Revision.
kPHO: Primary Health Organisation.
lWCTO: Well Child/Tamariki Ora.