Table 3.
Participants’ responses during the consultation
| Categories | Code of responses during consultation |
|---|---|
| Extract problems with genetic disorders | Summarize the anxiety |
| Check the facts about genetic disorders | |
| Organize by listening to the necessary narratives of the person | |
| Share your concerns about heredity disorders | |
| Ask why they thought they inherited the disorder | |
| Gather information for identifying the genetic disorder | |
| Determine if the person’s troubles are hidden | |
| Confirm the fact that you thought it was inherited | |
| Confirm knowledge about illness | |
| Listen to their understanding of the disease | |
| Pay attention to their family background and life | |
| Accept anxiety about getting the same disease | |
| Ask about their lifestyle | |
| Ask about their life | |
| Pay attention to and manage previous living conditions | |
| Indicate the problem | |
| Make sure that you express you are very worrieda | |
| Identify problems from statements and appearances | |
| Determine issues based on information and prioritize | |
| Ask what the person wants to do in the future | |
| Promote awareness of other causes of health deterioration | |
| Pay attention to medical condition/treatment | |
| Check the process until the start of treatment | |
| Paying attention to the treatment status and changes toward problem solving | |
| Collect information about their health | |
| Providing advice and thoughts potentially required for individual life | Suggest a countermeasure |
| Thinking together while advising the person on what they think is necessary | |
| Do not get preoccupied with hereditary conditions | |
| Lead a safe life | |
| Check what can be advised | |
| Health guidance for life improvement | |
| Health guidance closely related to daily life | |
| Provide information about what you can do | |
| Promote health behaviors such as undergoing regular medical checkups | |
| Create an opportunity to appraise your lifestyle | |
| Appraise lifestyle habits other than heredity-related aspects | |
| Create an opportunity to appraise patient’s lifestyle | |
| Thinking together about ways to improve the situation | |
| Encourage the patient to notice the problem | |
| Notice the problemb | |
| Suggest a solution based on what you can do | |
| Suggest what could be improved | |
| Providing people with accurate information about genetics | Assess the risk of onset |
| Thinking about ways to reduce the risk of onset | |
| Providing the correct information | |
| Providing expert knowledge to reduce anxiety | |
| Explain the relationship between lifestyle and heredity | |
| Tell the possibility of inheritance | |
| Respect the will of the other person | |
| Explain potential genetic effects | |
| Explain environmental factors | |
| Suggest preventive lifestyle behaviors | |
| Explain precautions in daily life and help prevent onset | |
| Informing the person of potential genetic risks | |
| Suggest what can be improved to delay the onset | |
| Give an explanation that can be understood by the other person | |
| Introducing the person to an appropriate specialized organization | Introduce them to a specialized institution |
| Introduce the person to doctors and other necessary healthcare institutions and healthcare professionals | |
| Introduce the person to a professional consultation agency |
a The consultant was asked to express that they are very worried
b The consultant was asked to identify the problem