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. 2021 Feb 12;16:79. doi: 10.1186/s13023-021-01719-2

Table 4.

Ranking of 5 most important domains in the web survey

# Times ranked
n (% of row total)
# Times in Top 5
n (% of total participants [n = 49])
First Second Third Fourth Fifth
Ambulation

10

(24.4)

12

(29.3)

9

(22.0)

4

(9.8)

6

(14.6)

41

(83.7)

Swallow

8

(22.9)

6

(17.1)

8

(22.9)

8

(22.9)

5

(14.3)

35

(71.4)

Speech

1

(3.1)

4

(12.5)

9

(28.1)

8

(25.0)

10

(31.3)

32

(65.3)

Memory

3

(10.7)

4

(14.3)

5

(17.9)

9

(32.1)

7

(25.0)

28

(57.1)

Cognition

8

(34.8)

4

(17.4)

4

(17.4)

4

(17.4)

3

(13.0)

23

(46.3)

Fine motor skills

2

(9.1)

8

(36.4)

2

(9.1)

5

(22.7)

5

(22.7)

22

(44.9)

Eye movement

2

(10.5)

3

(15.8)

5

(26.3)

2

(10.5)

7

(36.8)

19

(38.8)

Seizures

8

(57.1)

1

(7.1)

0

3

(21.4)

2

(14.3)

14

(28.6)

Hearing

2

(18.2)

3

(27.3)

3

(27.3)

1

(9.1)

2

(18.2)

11

(22.4)