Table 1.
Demographics and clinical characteristics of participants of the TELEmedicine for patients with inflammatory bowel disease (TELE-IBD) Trial with available baseline and follow-up general self-efficacy and patient activation measure scores
| Variable | Overall (n = 222) | Standard care (n = 75) | Biweekly testing (n = 75) | Weekly testing (n = 72) |
|---|---|---|---|---|
| Age (mean ± SD) | 39.3 ± 11.9 | 40.2 ± 11.0 | 39.7 ± 13.0 | 37.7 ± 11.6 |
| Sex (n, %) | ||||
| Male | 76 (40.6) | 24 (36.9) | 25 (38.5) | 27 (47.4) |
| Female | 111 (59.4) | 41 (63.1) | 40 (61.5) | 30 (52.6) |
| Race (n, %) | ||||
| White | 175 (93.6) | 59 (90.8) | 62 (95.4) | 54 (94.7) |
| Non-white | 12 (6.4) | 6 (9.2) | 3 (4.6) | 3 (5.3) |
| Diagnosis (n, %) | ||||
| Crohn | 129 (69.0) | 46 (70.8) | 47 (72.3) | 36 (63.2) |
| UC/IC | 58 (31.0) | 19 (29.2) | 18 (27.7) | 21 (36.8) |
| Disease duration (mean ± SD) | 13.1 ± 9.2 | 13.7 ± 10.0 | 12.4 ± 9.3 | 13.1 ± 8.3 |
| Disease activity (n, %)a | ||||
| Remission | 104 (55.6) | 32 (49.2) | 37 (56.9) | 35 (61.4) |
| Active | 83 (44.4) | 33 (50.8) | 28 (43.1) | 22(38.6) |
| Site (n, %) | ||||
| UM | 103 (55.1) | 34 (52.3) | 38 (58.5) | 31 (54.4) |
| UPMC | 56 (29.9) | 19 (29.2) | 18 (27.7) | 19 (33.3) |
| VU | 28 (15.0) | 12 (18.5) | 9 (13.8) | 7 (12.3) |
| Mental healtha (mean ± SD) | 75.4 ± 17.0 | 76.4 ± 15.9 | 74.4 ± 17.9 | 75.3 ± 17.3 |
| Locus of controla (mean ± SD) | 9.9 ± 3.8 | 9.7 ± 3.8 | 9.9 ± 3.9 | 10.1 ± 3.7 |
| Baseline knowledgea (mean ± SD) | 12.8 ± 4.3 | 12.7 ± 4.4 | 13.0 ± 4.8 | 12.6 ± 3.6 |
| GSE baselinea (mean ± SD) | 33.3 ± 11.8 | 32.6 ± 3.8 | 32.5 ± 3.9 | 32.4 ± 4.0 |
| PAM baseline*a (mean ± SD) | 69.8 ± 16.5 | 69.9 ± 13.9 | 70.8 ± 16.0 | 70.2 ± 14.4 |
The Harvey Bradshaw Index (HBI) was used to assess disease activity in Crohn patients. The Simple Clinical Colitis Activity Index (SCCAI) was used to assess disease activity for UC patients. Rotter’s LOC scale was used to assess LOC. The Crohn’s and Colitis Knowledge (CCKNOW) survey was used to assess participants’ knowledge of their disease. The 5-item Mental Health Inventory (MHI 5) questionnaire, a subscale of the 36-item Short Form Health Survey, was used to assess participants’ mental health and quality of life
P value between groups is less than 0.05