Table 1.

Summary of Questionnaires used in Study

Title of questionnaire	Questionnaire version	Invitation distribution	Sarcoidosis patient group	Control group	Dates of Survey	Method of capture	Comments
UC/AMC	UC/AMC English	Posted on FSR website and all patients see at Cincinnati clinic	World wide including Cincinnati OH USA	Cincinnati OH USA	4/1/2020 to 7/1/2020	REDCap	For those in USA, state also indicated
FSR	UC/AMC English	Invitation to those in FSR registry	World wide	N/A	4/6/2020 to 7/1/2020	SurveyMonkey
Dutch	Dutch version UC/AMC	Members of Sarcoidose.nl, and advertisement at the ILD Center of Excellence, Nieuwegein, the Netherlands	Netherlands	N/A	6/29/2020 to 7/29/2020	SurveyMonkey	Collected also if on no medication for sarcoidosis and patient’s BMI
Italian	Italian version of UC/AMC	e-mail contacts of the Italian Association for Sarcoidosis patients (ACSI)	Italy	N/A	4/1/2020 to 7/1/2020	Google Forms
Spanish	Spanish version of UC/AMC	recruited through membership of the Spanish association of patients with sarcoidosis (ANES-Asociación Española de) using e-mail contact	Spain	N/A	May 2020	Google Forms

UC/AMC: University of Cincinnati/Albany Medical Center; FSR: Foundation for Sarcoidosis Research; N/A: not available; ild care: interstial lung disease care; BMI: body mass index

REDcap: Research electronic data capture https://redcap.research.cchmc.org/

SurveyMonkey: www.surveymonkey.com

Google Forms: https://www.google.com/intl/en-US/forms/about/