Table 1.
Summary of data sources
| Case 1: Seizure detection and reporting in epilepsy | Case 2: Remote monitoring for heart failure | Case 3: Video consultations in remote areas | |
|---|---|---|---|
| Duration of data collection | 2017-2018 (18 mo) | 2016-2018 (26 mo) | 2019-2020 (9 mo) |
| Interviews |
29 participants total Service users (n = 24): 13 patients and 11 relatives Staff (n = 5): 1 consultant neurologist, 1 specialist epilepsy nurse, 1 professional carer, and 2 technology professionals. Additional email and phone discussions with patients. |
51 participants total Service users (n = 28): 25 patients and 3 relatives (including 1 discussion group) Staff (n = 23): 4 cardiologists in the RCT, 4 research nurses, 10 heart failure specialist nurses (2 hospital, 8 community), 1 nonclinical researcher, 1 administrator, 1 trial manager, 1 general practitioner, and 1 bioengineer. |
78 participants total Service users (n = 16): 12 patients and 4 relatives Staff (n = 49): 12 doctors, 14 nurses, 6 allied professions, 2 healthcare support workers, 4 clinician-managers, 8 nonclinical managers, and 3 IT managers. National stakeholders (n = 13): 5 national policymakers, 4 national program managers, 3 systems engineers and national technical support, and 1 technology industry. |
| Field notes and observations |
Ethnographic observation in clinical consultations (n = 26 first and follow-up consultant and nurse appointments) Ethnographic observation during IT “troubleshooting” with patients Observation of patients using the wearable and app |
Examination of the technologies (patient peripherals and tablet, central dashboard) Observation of patients using the tablet and central support nurse using the dashboard 5 meetings of the trial implementation team Significant event review meeting relating to an alleged missed deterioration |
Examination of the technologies (partly by using the platform to conduct video calls and interviews) “Walkthrough” of both face-to-face and virtual arrivals at reception desk and transfer to waiting room at hub and peripheral sites Observation of patients having video consultations (n = 6) |
| Documents |
Project documentation, including details of the technology Published articles and abstracts, reporting pilot findings |
Trial protocol Minutes of meetings and approximately 60 emails with trial team Published articles reporting on trial findings |
Technical documentation National Technology Enabled Care policies Implementation protocols and guides for video consultations |
IT: information technology; RCT: randomized controlled trial.